Eloises H at 19 months

[claire & eloise]

Eloise is now 19 months old and here are some pictures of how her H is looking now.
we are due to see a facial plastic surgean at the end of August so fingers crossed its good news

[sara beth]

Hi, Eloise is beautiful!! My granddaugher, Kambreigh, has an H in the exact same place as Eloise does. Hers is also a compound H, with a large "lump" under the skin. The outer, red, part, seems to be involuting, and is mostly pink, but the under part is too big to remove at the moment. She is only 6 months old, and Dr. Metry said that she is too small, that it would take too much out of her neck to remove it now. They are going to wait and see until she is bigger, and continue on steroids. Please let me know how Eloise goes, and what they do for her. Kam's is so similar looking, and it is nice to be able to hear how others are doing with treatment.
BIG HUGS,
Sara Beth

[kguy0515]

If I may ask how big was Eloise h when she was born? My daughter is just 9 weeks old and I'm trying to get an idea of how hers might grow. Her's also has a lump under the skin but is just now a bit bigger than a quarter. The lump under the skin is more like the size of a half dollar. Any info would be great. You daughter is beautiful.

[claire & eloise]

Eloise's H wasnt present at birth.it came up about a week or so after it started as just a small red rash behind her ear then developed into H.
i have put a few pics in for you to try and so you how it developed.
1st pic..i day old
2nd.. around 9 weeks old
3rd.. 2 months
4th.. 2 months
5th...7 months..

please fell free to message me with any questions or advise i will be happy to help.

[jgoodman0814]

shes absolutley beautiful and she looks so happy. my 1 year old just had surgery done with dr azizkhan in cin, oh. we couldnt be happier with the outcome! hes the top surgeon for vasular birthmarks in our area. here is my daughters site. www.caringbridge.org/visit/avaball

[Christin]

Hi Claire!
I am glad to see Eloise so happy and nice! The H seems a bit brighter, am I right?

Ebba is also doing fine. The ulcers are away and we finally don´t need to change dressings every other day. We should meet the doctors when she is two years old, now we wait and see.

Feel free to e-mail me, I could send you a picture of Ebba so you can see for yourself. I don´t remember how to do it here on the site...

All my best to you and Eloise!
(here in Sweden we have a song about the girl Eloise by a group called Arvingarna!!!)

[claire & eloise]

hi christin have sent you an email chats soon