Originally Posted by Cinderella22
A-V Malformations from left shoulder to finger tips, diagnosed at 5yrs. old Dr. have called them everything. I've had 9 surgeries and an ulna nervre graft.... with no sucsess!! Now I'm hoplessly dragging my M.R.I films around and there is not a Dr. in TN. willing to or has the knowledge of this disease thats caused me so much pain for 30 yrs. I cant believe I found this website I'm not alone in this the Dr's always made me feel like some kind of an oddity! Is ther any where to start? To top it off I do not have health insurance so even if I found some one not sure if i could afford it. I just keep PRAYING that one day a Dr. will say oh yea I can help you no problem.
I understand how you are feeling, I have a VM from left elbow/forearm with a lot of invovlement with the elbow joint. When I sought treatment (after finally getting the right diagnosis!) I didn't have health insurance, but luckily my parents enough money to get me in the door at Swedish (Ten grand for hospital and 2 grand for Dr.Yakes up front).
Ask one of the experts on the main page and hopefully they can point you in the right direction.