I have a 10 week old son who was born with two pink/reddish looking bruises, one on the outside of his left knee, and another on his left forearm. Over the course of the next 4 - 6 weeks he developed a total of 8 hemangioma's in various locations: 2 on right shin, 1 on right knee, 1 on left knee, 1 on left forearm, 1 large on on left side where his diaper rubs, one on his chest and one on his back.
After recieving some nasty comments from onlookers at the grocery store ("your baby looks like you put cigarettes out on it") I pushed our pediatrician to get a referral with a dermatologist.
We're going to the Sick Kids hospital in Toronto next week where I'm going to request an MRI to check the rest of his body as I'm concerned about internal lesions as well as treatment options for the hemangiomas that are on the outside of his body. Our peadiatrician has insisted to take a "wait and see" approach, and I don't want to come off as superficial or vain, but it really breaks my heart to see people stare or make rude comments. I was terrified to take my little guy swimming and when we go out in public now I cover his legs and arms up with a blanket to avoid stares and ignorant comments.
I'm glad I pushed for a referral and that we're beeing seen by a dermatologist, but at the same time I have so many questions and would like to be informed of treatment options if this doctor has the same "wait and see" approach.
Can anyone give some insight / response to my questions below?
1) How do you deal with ignorant comments from people? Any great lines to shut these people up when they accuse us of burning our baby with cigarettes?! that broke my heart...
2) what is the best way to find internal lesions? I'm terrified he has lesions on his brain - an ultrasound won't detect these, am I over stepping my boundaries by requesting a MRI
3) Is Laser or surgery feasible for such a young baby?
4) If we were to wait for the hemangiomas to involute themselves, wouldn't the skin affected still be disfigured in some way? Why wait for them to grow over the next year and a half only to have a larger area of damaged skin?? Am I understanding this right? If this is the case, why dont' doctors remove them or treat them earlier on instead of watching them grow and get larger?
I'm going to try to attach some photos of Liam, they're not overly good as far as showing them, I'll try to post better photos once he's awake.
I would appreciate any comments / advice / insight as we're anxiously awaiting this appt. and I'm terrified at the thought of my little man having internal lesions.