Facial AVM outreach! - Vascular Birthmarks Foundation Forum
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  #1  
Old 08-26-2008, 06:46 PM
Shalonavm Shalonavm is offline
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Location: El Dorado Hills, CA
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Default Facial AVM outreach!

Hey everyone!

My name is Shalon and I have a facial AVM which I am currently having treated by Dr Yakes in Denver.

I have recently been in contact with two other ladies who also have facial AVM's. And it has made such a difference to me to be able to talk with them and share experiences.

So I created my own website in hopes of getting in touch with more people who are facing this challenge. I don't know exactly how to spread the word, or if people will really be interested in my site, but I thought it was a start!

So if you or someone you know has an AVM, check out my website! http://sites.google.com/site/shalonsavm/
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Visit my website at
http://sites.google.com/site/shalonsavm/

Visit my blog at
http://www.shalonavm.blogspot.com/
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Old 08-26-2008, 07:34 PM
missy missy is offline
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Thank you so much for posting this!

Missy
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  #3  
Old 08-29-2008, 05:16 AM
Shalonavm Shalonavm is offline
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Missy, thanks.

I know that these forums are a huge help to people who want to research the conditions and find answers. And I've often come online exactly for that. I know my website is not the same kid of resource (since half the time I can't figure out the medical mumbo jumbo!) but I hope that people like it and that the "human" aspect is something that might help someone.

I've been lucky so far and have been in contact with five additional AVM-ers since starting my site. And of course my original two "AVM sisters" whom I now share such a special bond. Even just those few people make it all worth while because I know that they are also glad to have been able to share with me.

So thanks to VBF for being here for me to have the opportunity to make this outreach!

Yay!
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Visit my website at
http://sites.google.com/site/shalonsavm/

Visit my blog at
http://www.shalonavm.blogspot.com/
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