Hello - first off, know you are in the BEST hands with Dr. Waner. My daughter Riley, had a large hemangioma on her scalp - it was the size of a baseball at it's largest. Dr. Waner performed six surgeries on her (the first three were surgical excisions, and the last three were scar revisions.) The first surgery was also at 13 months old - her surgical incision was covered by surgi-strips, and gauze, and they had a mesh like bandage covering her entire head. This was the only surgery that had any type of bandage other than the surgi-strips. For all of her surgeries, I kept her well medicated with the tylenol/codeine for the first 24 hours. After that, advil if I sensed she was in pain. She was always vocal enough to let me know her pain level! Here is my advice for the day of:
Bring a bag full of "surprises" - I always hit the dollar store and pick up little books and toys that she has never seen before - the party store is good too, as they have all types of little goodies.
Portable DVD player and DVD's..... saved us, and made waiting much easier.
A bottle/sippee cup filled with favorite beverage HIDDEN in your bag - when they wake up in recovery they are thirsty and hungry - I say HIDDEN because she cant have anything before the surgery, and you dont want her to see it in your bag. (My husband always had the backpack with the HIDDEN loot!)
Spare PJ's and diapers
I am not sure what hospital you will be at, but we had all of Riley's surgery done at ROOSEVELT. Depending on what anesthesiologist you have, they will let her stay in her own PJ's, and some even held on to Riley's blanket and pacifier so she had it in recovery right away. Dr. Franco is our personal favorite, but they are all wonderful
Expect a long day - usually you check in by 7am. Depending on the length of the surgery, we were usually on our way home by 5pm. We are fortunate to live in NJ, so it's an easy trip.
My e-mail is firstname.lastname@example.org
if you think of any more questions.
Riley is four now, and we are almost done with our hemangioma journey. We have a long scar, and a silver dollar size bald spot.
I wish you the best next week - please feel free to contact me! I will help answer any questions you might have!
Kelli (mom to Riley Jane, age 4, scalp hemangioma)
PS: They also let you carry your daughter into the OR, and you can hold her until she is asleep - Dr. Levitan (Dr. Waner's right hand) will walk you out of the OR into the waiting room. The walk for me is the hardest, but 5mg of valium helped alot. No joking there.