Beta blocker working miracles - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 11-10-2008, 05:12 PM
Pratts Pratts is offline
Junior Member
 
Join Date: Sep 2008
Posts: 12
Smile Beta blocker working miracles

Our baby girl has a fairly large H in between her eyes. The mass part was so big it took up the entire area and was going into her eye lids. We started her on beta blockers and within hours it was decreasing in size. We are on week two and it is 50% smaller with NO negative side effects. We are SO happy about this. The red part is starting to gray out as well. People in day care have been commenting on how great it looks!
Reply With Quote
  #2  
Old 11-10-2008, 09:43 PM
missy missy is online now
Administrator
 
Join Date: Apr 2006
Posts: 1,712
Default

THAT is cool!!

How did you ever talk your doc into that?

Missy
Reply With Quote
  #3  
Old 11-11-2008, 12:34 AM
colleenmerkins colleenmerkins is offline
Junior Member
 
Join Date: Oct 2008
Posts: 7
Default

What is a beta blocker? Is it a shot? Did your pediatrician administer it or did you have to see a specialist?
Reply With Quote
  #4  
Old 11-19-2008, 10:01 PM
Pratts Pratts is offline
Junior Member
 
Join Date: Sep 2008
Posts: 12
Talking

I took her to that Arkansas Childrens hospital where all they do is treat vascular birthmarks. We did the laser and steroid injection at 11 weeks, that did little for us so they started her on the propranolol a few weeks later. We give it to her three times a day, it is in a liquid form.
It really is amazing, it is ALMOST flat.
We did have to take her to get her vitals checked before and after to make sure it did not lower her heart rate. I really cannot tell you how pleased we are!
Email me if you have any more questions:
TNpratts@gmail.com
Reply With Quote
  #5  
Old 01-30-2010, 03:09 AM
motheroftwo motheroftwo is offline
Junior Member
 
Join Date: Jan 2010
Posts: 1
Default

Quote:
Originally Posted by Pratts View Post
I took her to that Arkansas Childrens hospital where all they do is treat vascular birthmarks. We did the laser and steroid injection at 11 weeks, that did little for us so they started her on the propranolol a few weeks later. We give it to her three times a day, it is in a liquid form.
It really is amazing, it is ALMOST flat.
We did have to take her to get her vitals checked before and after to make sure it did not lower her heart rate. I really cannot tell you how pleased we are!
Email me if you have any more questions:
TNpratts@gmail.com

My daughter also has a disfiguring hemangioma over her eye. Her doctor admitted her to the pediatric intensive care unit for 24 hours for observation while starting her on propanolol. the very next day we seen improvement. we are now on week 3 with propanalol and she can almost open her eye completely. The color has started to fade, and the H itself has softened. It still a little "puffy" but it has started to flatten out. I just think it is great! I still get a little nervous because it is a new type of treatment though. I'd appreciate any feedback that you can give me about your child! thanks!
Reply With Quote
  #6  
Old 02-06-2010, 06:07 AM
Pookey28 Pookey28 is offline
Junior Member
 
Join Date: Jan 2010
Posts: 8
Default

oh my this is good to hear! We are starting our 4 month old baby girl on it next week. I am so nervous...but hearing these success stories puts e at ease
Reply With Quote
  #7  
Old 02-17-2010, 08:15 PM
momof3inpa2009 momof3inpa2009 is offline
Senior Member
 
Join Date: Dec 2009
Location: PA USA
Posts: 112
Default

Motheroftwo: Get a hold of me! My daughter just started propanolol too --it will be a week tomorrow. I know what you mean about being afraid cuz' of it being a new treatment for hemangiomas. My daughter was also in the hospital for monitoring while she received her few so many dosages. They started out small and increased to the full amount she gets at home. Email me at: bish0509@yahoo.com if you would I would love to talk with you as our daughters go thru this! My daughter's is more mushy and is a bit smaller and the color is more skin colored rather than blue. My daughter's is also above her eye. It's not on her eyelid but it's pushing down on it which has the doctors concerned. It was making her eye lid come down and for the first time in a long time we got to see her crease in her eye! Pookey28 feel free to contact me too since you are just starting to go thru this too! My email is: bish0509@yahoo.com Please contact me ladies! Would love to hear from you both!!!!!
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump