My story is kind of silly because for the first 12 years of my life I was told I had a hemangioma. When I was finally correctly diagnosed with a venous malformation, I seemed to be told conflicting information constantly on whether I could have surgery, birth control, children, etc!
My VM has slowly spread through the years from a dot on my foot, to a large malformation on my foot, add small VMS up my leg.
The pain in my childhood was very rare. I remember dropping a piggy bank on my foot once and it was swollen and painful for a week, but that would have happened regardless.
Of course it hurt when the rowdy boys at school thought it was cute to kick a girl in the back of the foot. There were occasional things, but no chronic pain.
Pain started more in high school during heavy involvement in cheerleading and dance, but was always manageable.
Through college I went through a lot of emotional turmoil trying to figure out whether I could have children (thinking about getting married..). I did a number of MRI's, CT scans, and ultrasounds (Finally, the proper care I should have received as a child!) and was told that I was safe to have children but needed to be closely monitored.
After college, I got pregnant. The later part of pregnancy was difficult. My feet swelling caused a lot of pain in my VM. There were days I could barely put pressure on my foot. My doctor prescribed Tylenol w/ Codeine and I took it when needed to sleep, but mainly managed the pain by staying off my feet, and staying out of the heat to control swelling. I had a perfectly normal delivery and perfectly healthy baby!
And here I am today! Hope that helps!!