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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

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  #1  
Old 01-06-2009, 01:38 PM
Teagan Teagan is offline
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Join Date: Jan 2009
Location: Ballston Spa, NY
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Default New Baby, New Member

Greetings all,

Our first child, Teagan (hence the screen name) was born on November 25, 2008. At birth, she had what appeared to be a bruise near her right temple and eyelid. At first, my wife and I thought it was just a bruise, and actually disagreed with the hospital diagnosis of a hemangioma. (My wife's cousin has a hemangioma, and this looked nothing like that.)

Within a week or two, the color began to turn more red than it had. There has been no noticeable involution as of yet, but today my wife found information on capillary hemangiomas, and after reading as much as we could find, we're convinced this is what Teagan has.

We have an appointment with a pediatric opthamalogist in a few more weeks, as well as another well-baby checkup with the pediatrician next week. We plan on speaking to these two physicians about the possibility of this lesion being a capillary hemangioma, and looking into our options as far as getting her examined by one of the specialists in our area.

I just wanted to stop in to introduce myself. I hope that as I learn more about VB's, I'll be of some assistance.

Take care,
Scott
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Old 01-06-2009, 01:53 PM
missy missy is offline
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Up in Ballston Spa... in that area of the country, you have access to a LOT of specialists, should you need one.

Thanks for the intro and we'll expect to see you around!! Please don't hesitate to get in touch if you need anything.

Missy
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  #3  
Old 01-07-2009, 12:56 PM
jgoodman0814 jgoodman0814 is offline
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I would also check into a vascular specialist along with your other two drs. They can give you the in's and out's of vascular birthmarks/hemangiomas. It was the best thing that we did for our daughter. You can check her site out and see her before and after photos and story. Welcome and hope all is well.
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Old 01-07-2009, 02:39 PM
Teagan Teagan is offline
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Thanks for the warm welcome, all! We've got a regularly scheduled ped's visit next week, then the opthamalogist in February. I've also emailed Dr. Waner in the meantime. Right now we're just in the exploratory phases, trying to do some research and get some opinions in between now and the opthamology visit, since right now she's really too young to have any sort of intervention anyway. I already love this site though!
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Old 01-09-2009, 02:51 AM
nickbar nickbar is offline
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If you need any help with connecting with Dr. Waner, please feel free to email me and I can put you into contact.

Given the location of her birthmark, I would encourage you to call the opthamalogist and ask to be put on a list for sooner appointment if another is cancelled. The growth of the hemangioma can put pressure on the eye and could cause issues such as astigmatism. Even though she is very young, there are options to help control distructive growth.
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  #6  
Old 01-09-2009, 11:57 AM
Teagan Teagan is offline
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Thanks, Corinne....I will have my wife call the opthamalogist this morning. Fortunately we haven't noted any growth or raising yet. The only thing we've noticed is the change in color. Her eyelid IS a little swollen, but it's not "raised" like I've typically seen with hemangiomas...it's more like she's got a puffy eye from a lack of sleep, and it's not limited to the area of redness. But I'll definitely call the opthamalogist today.

As for contacting Dr. Waner, I sent him an email with a photo on Tuesday. I understand that he's incredibly busy and that it will take a little while to hear back from him. I'll get in touch with you if it becomes apparent that he didn't get my email.

Thanks again,
Scott
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