Seeking Advice for Eye Hemangioma
My son was born on 12-12-08 with a hemangioma on his left cheek, sort of shaped like a fish. It is about the size of 2 quarters set next to each other. I had feared it might interfere with his eyesight, as when you look in the corner of his eye you can see red. After an awful MRI experience last week (took 2 1/2 hours with no contact with the staff, he did not come out of anesthesia fully for hours, we had to take him to ER that night), we found it does go into the orbit of his eye. We have started oral steroids - prednisolone, but I am wondering if anyone knows of any other cases like this and what type of treatment was done. I am not sure what the next steps may be, if surgery could be in his future, or what to expect. I really don't want him on steroids long term if there is a better option out there. I have tried to research propranolol, and it looks like there have been some people very happy with the results. Also, we are looking into seeing a specialist in Chicago, IL. If anyone has any experience with Dr.'s there or can give me any information it would be much appreciated. We want the best care we can find, to save his eyesight and to shrink his hemangioma. Thank you in advance, I am so glad to have found this web site.