successful propranolol treatment! - Page 2

momof3inpa2009 · #11 03-23-2010, 01:02 PM

mumof2--same thing here....when others see our daughter's "bumpy" (as we call it) they say they see a huge difference but some days we don't see it. I also feel as though the results are a bit slow. Like at first it seem fast and dramatic but now it's a bit slower process.

dr.satish kumar · #12 06-15-2010, 01:31 PM

Has any one heard of effects of Proponolol on adults with portwine stains?

missy · #13 06-15-2010, 02:34 PM

I have never heard of it being used for port wine stains at all, only hemangioma.

Missy

tyler12 · #14 03-13-2013, 12:35 PM

Hi there i am new to this site so not sure how it works but anyway i am 31 and i have a risen hemangioma which is covering my face anyway when i wa born and the doctors finally realized what i had it was grown quite a bit by then an i have had lots of surgery over the years and stopped when i was 13. But i had never heard of propranolol but i am wondering if it may work on me now at my age and obviously because mine is fully grown and to be honest i don't know what to do from here. I know some people may so just live with it but hey it's easy for people to say, Also i have asked for skin graft but i was refused by my old surgeon as of all the risks so i'm now on plan B, Anyway if anyone could please answer and give me some kid of advice then that would be great also can you see your doctor for propranolol or would i need hospital visits.

missy · #15 03-13-2013, 01:48 PM

Hi and welcome!

Hemangioma is a term that refers to a birthmark that only babies have. They resolve in some way or other by puberty.

If you have a vascular birthmark as an adult, it is either a port wine stain or vascular malformation, but not hemangioma.

Many doctors still use the terms interchangeably, but they are not the same thing.

That medication would not work for a vascular malformation, though it does work in some children for hemangioma. There is no evidence that it would work for you, though, and I don't think any physician would prescribe it.

Where are you located? Perhaps you could see a specialist that does have experience with vascular malformations in adults.

Missy