Sudden Rapid Growth of H? - Vascular Birthmarks Foundation Forum
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  #1  
Old 03-13-2009, 11:35 PM
Tessamarie Tessamarie is offline
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Default Sudden Rapid Growth of H?

Almost overnight, my daughter's H has started rapidly growing, with the skin under the H swelling (it looks bruised but I am sure it is because of the blood vessels feeding it). The swelling part is alarming us, along with the fact that it was so sudden of a change and we took her to see her family doctor today who is now referring us to a dermatologist (however, the wait might be very long). Has anyone ever experienced such very sudden, rapid growth? What does this mean? We're very worried!
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  #2  
Old 03-14-2009, 12:07 AM
Tessamarie Tessamarie is offline
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Here are some pictures from tonight of her H. It is bulging from her forehead over her right eyebrow.
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File Type: jpg 100_7512.jpg (96.7 KB, 70 views)
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Old 03-14-2009, 01:57 AM
sophia's mum sophia's mum is offline
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Hi, I suggest you ask your family doctor to refer you to dermotologist @ HSC directly. When the referral letter is faxed over to the HSC's dermotology clinic, you can call the clinic and ask for an immediate attention. I did that and it only took me 2 days to meet the dr. The HSC is using propanolol to treat infant's H.
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Old 03-14-2009, 03:14 AM
Tessamarie Tessamarie is offline
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I just responded to you on another thread but after reading what you posted here, I am thinking I might be making a mistake just seeing a dermatologist in the area first. That was a quick referral and I also have read good results on here with propanolol! Thanks, I had no idea HSC was using this treatment
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  #5  
Old 04-09-2009, 02:50 AM
megangood megangood is offline
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Default How old was your baby when H started growing rapidly?

How old was your baby when H started growing rapidly? The reason why I ask is because my son has a large segmental H on his eyelid and forehead and a couple on his cheek and one by his lip. So far they have stayed flat (he is almost 11 weeks old). His doctors think it will stay flat.
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Old 04-09-2009, 02:55 AM
CarrieChris CarrieChris is offline
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This looks very similar to Valentina's hemangioma. I don't know if you have had any contact with Marina, her mother, but you should try to connect with her. Bella's started really growing fast around one month of age. She started on steroids at 5 or 6 weeks of age.
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  #7  
Old 04-09-2009, 03:09 AM
megangood megangood is offline
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Default Here is a picture

I have not contacted anyone yet. Here is a picture from 10 weeks old.
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Last edited by megangood : 04-09-2009 at 03:28 AM. Reason: Add picture
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  #8  
Old 04-09-2009, 05:02 AM
nickbar nickbar is offline
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My son Nicholas' h. looked very similar, but grew rapidly at 2-6 weeks... he was put on oral steroids and we then started laser at about 4.5 months old.

If you would like to see pictures of my son, go to www.multiply.com (you probably have to register to see pictures, but I will approve you)... he is on the last album, under Nicholas' segmental h. Our first priority was his eye as the h. was in is upper inner eye lid and it was causing drooping. Our second concern was the damage the h. was doing to the skin, and skull as it the h. became very thick. Laser in my opinion kept his skin firm and reduced the red. Another issue was the telangiectasia vessels (your daughter appears to have this as well) were quite thick and there were a lot of them. His doctor actually traced each vessel with a diode laser to destroy them. We could not be happier with the results. If you would like to know more, feel free to email me
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  #9  
Old 04-09-2009, 03:43 PM
Tessamarie Tessamarie is offline
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megangood-my daughter's grew rapidly from about two months old and is still growing now (she is 10 months old), although the quickest rate of growth has been only lately (around 9 months) when it seems to have rapidly progressed and is bulging out. I was told by my doc when she was around two months old that it would remain flat and I was so hopeful but now my doc can see she was wrong and we've been given a referral. I would suggest you may want to get a referral sooner so that it is in place in case you need it. I should have done this much sooner.
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  #10  
Old 04-09-2009, 03:46 PM
Tessamarie Tessamarie is offline
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nickbar- I signed up but I have no idea how to search for your album?? any ideas?
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