Hemangioma appeared after 4 years and a halg - Vascular Birthmarks Foundation Forum
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  #1  
Old 06-26-2015, 02:24 PM
Miriam Gonzalez Miriam Gonzalez is offline
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Default Hemangioma appeared after 4 years and a halg

hi all, i hope someone can help me.
my daughter is 4 years and 10 months old, she never had a vascular birthmark in her head or any part of her body.
suddenly, on April 2015 a red dot appear in her scalp that has been growing fast, now is completely red measuring 14 x 5 x 12 mm.
the dermatology thought that was just a cyst and that can be easily removed but after the scan they confirm that the features suggest a vascular lesion such as an infantile haemangioma (non involuting) and that there is a suggestion of pulsatile flow within this lesion.
i am really scared as now they told me to visit a surgeon in Westmead, Children Hospital (Sydney).
It seems that this type of mark appears when the baby born or weeks after but i can't find any information that tell me that can appear at 4 or 5 years of life.
please can someone tell me if this is a normal case ? A surgery is recommended ?
unfortunately the appointment is for one more month as the doctor is on holidays....bad luck.
any help will be appreciated.
thanks, miriam
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  #2  
Old 06-26-2015, 04:01 PM
missy missy is offline
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Hi and welcome,

So many doctors still use the term "hemangioma" when, in fact, you should be searching for information on venous malformations.

From: http://birthmark.org/node/22

Quote:
Arteriovenous Malformations are always present at birth but are usually not noticed until later in life. Sometimes they do not appear until adulthood. Defective blood flow has been associated with these lesions. As the lesion ages, the vessels enlarge and thicken to compensate for the increased blood supply. There are two grades: low and high. Low grade grow slowly with the child and high grade expand rapidly, growing faster than the child until the lesion may eventually become life threatening.
An AV malformation is a firm mass. Common sites are the lips and other head and neck areas. Mixed malformations include a combination of two or more vascular lesions.
This is exactly what you are describing.

Who will you be seeing next month?

I was going to link to the Wikipedia page on the subject, but it is alarming!!! If you go read that on your own, please do not read that one without doing some meditation first ... sheesh!!! It presents the signs and symptoms in very alarming language!

So, read that at your own risk.

Get in touch with one of our experts here: http://birthmark.org/experts.php

And keep in touch, Miriam! I want to hear how things go.

Missy
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  #3  
Old 06-26-2015, 10:35 PM
Miriam Gonzalez Miriam Gonzalez is offline
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hi Missy, thank you for your reply.

the doctor name is Peter Hayward. I live in Australia, Sydney.

do you know what is the especiallity that looks after the arteriovenous malformations ? as i can see dr hayward is a plastic surgeon, this case looks more for a neurological especialist, maybe i am wrong.

now i am more alarm than before.

thanks again for your help.
miriam
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  #4  
Old 06-27-2015, 04:34 PM
missy missy is offline
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Yes, this is why I didn't want you to go to the wikipedia page! It's alarming.

Rather than a neurological specialist, right now you need a solid diagnosis. We used to have a listing for Dr. Lord in Sydney, but he might have moved to Boston!! I think what you need to look for is a radiologist.

http://birthmark.org/node/52

Missy

PS... don't be alarmed! Please don't anticipate the worst scenario right away. No matter what kind of vascular lesion it is, if it is one at all, it can be treated or managed.
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  #5  
Old 06-28-2015, 11:47 PM
Miriam Gonzalez Miriam Gonzalez is offline
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thanks Missy. I will do that today, I will let you know how i go.
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  #6  
Old 07-09-2015, 04:25 AM
missy missy is offline
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I was wondering what happened? You guys were on my mind.

Missy
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