What a next step after removing/debulking a big part of Hemangioma?

natlok · #1 04-17-2009, 04:34 AM

Hi all dear people!!!
Yes, we removed our Hemangioma. It was quiet a story!!! Thanks a lot to the Foundation, Dr. Linda and all supportive forces!!! My heart is full of the deepest appreciation!!! Thank you all!!!
Now it's the next step, probably, a laser therapy - a small portion of Hemangioma still there.
Please, whoever had such an experience, please, share!!!
How long should we wait for healing the wounds? How soon should we do the laser??
I am attaching the pics.
Thank you

Natasha

missy · #2 04-17-2009, 11:12 AM

Wow, she looks GREAT. Honestly, she must be so much more comfortable.

No answers, just wanted to say hi and tell you how good she looks!

Missy

natlok · #3 04-17-2009, 03:32 PM

Thank you, Missy!!
You are great with supporting all of us, moms, dads, families!!
Yes, Alicia is much more comfortable than before. Though her left eye still is looking aside sometimes. I hope it will fix by itself, but would like to hear what other people's experiences are. It's still a journey ahead. But we are ready!!! Thanks to Dr. Fay from Boston, he made such a miraculous work!!!
Next step is probably New York.

nickbar · #4 04-17-2009, 05:09 PM

YEAH! Fabulous! I am so thrilled for you. I would wait for the area to heal completely before you start laser. We did not have surgery...but my son had laser treatments and we are thrilled with the results. I would be happy to share more if you have questions. Most child heal very quickly from surgery. I would also ask this question to Dr. Fay or the doc doing the laser.

natlok · #5 04-18-2009, 10:00 PM

Thanks, Corinne!
It's only 20 days after a surgery, and we are waiting for the wounds healing up. So far it's a lot of redness around - something is parts of the scar, something - a small portion of the hemangioma. It may spread out by itself, or maybe some laser we still have to add. Don't know yet!!!
But what is the reality - it's absolutely different feelings about it. We are not that stress how we were before the surgery!!!

CarrieChris · #6 04-19-2009, 01:34 AM

Our daughters hemangioma area opened up after her reconstructive surgery. It took five days to heal completely once we got back to Dr. Serena for her wound care. He did two mist therapy sessions and gave us an ointment called Suile. It was amazing how quickly it healed.

nickbar · #7 04-19-2009, 03:09 AM

I've been told that the full results and changes (as things settle back to normal) post-surgery can be even a year. Not saying you have to wait that long...but even though she will appear healed in the next month... changes can be that long as she grows, etc.

Corinne

natlok · #8 04-22-2009, 03:57 AM

Hi, friends!!
I have a Q. about a healing wounds. Does the wound have to be wet, I mean moist?

LesleyUK · #9 05-10-2009, 09:06 PM

Hey,

Your daughter looks fab - I bet it's a worry of your mind.

Our son has just had the same operation..his was on his face..and like you I am worried about how long it will take to "sort" itself out.

I only wish we could see into the future!!!

Marylin Rodriguez · #10 10-11-2010, 07:26 PM

Quote:

Originally Posted by natlok

Hi all dear people!!!
Yes, we removed our Hemangioma. It was quiet a story!!! Thanks a lot to the Foundation, Dr. Linda and all supportive forces!!! My heart is full of the deepest appreciation!!! Thank you all!!!
Now it's the next step, probably, a laser therapy - a small portion of Hemangioma still there.
Please, whoever had such an experience, please, share!!!
How long should we wait for healing the wounds? How soon should we do the laser??
I am attaching the pics.
Thank you

Natasha

I AM REALLY HAPPY FOR YOUR DAUGHTERS SURGERY SHE LOOKS REALLY GOOD, I WILL HAVE MINES ON OCT 18 2010 WITH DR. WANER. HOPE GOES WELL TOO.