We just got back from our daughter's specialist appointment with a dermatologist in our area and we were told the following:
1. Due to the fact she has more than one facial H, with one looking compound, it is possible that she has internal H which are very serious
2. Her H will NOT fade on it's own until at least the age of 7, but most likely until the age of 9. She said it would NOT go away when she was 1 or 2 like we were hoping it might
3. Since steroid cream did not work, the only thing they can do now is refer us to Sick Kids Hospital where they can see if there are any other measures or just the wait and see approach
4. Her optic nerve could potentially be damaged because her H is above her eye and that needs to be looked into to make sure her vision is not impaired in any way.
5. If she bumps her head, we must put pressure on it and immediately take her to sick kids and get it seen. The derm. said that any bleed is a serious bleed and that it opens up the blood vessels and she can very quickly lose a lot of blood. She said we must be very cautious of her not bumping her head (we have been very careful but she is also learning to walk right now and it is almost impossible to avoid all bumps on the head or spills..but we will continue to be cautious)
Has anyone else been given this information? We are awaiting the call with the actual referral date.