Help with Hemagioma in my 8 week old baby - Vascular Birthmarks Foundation Forum
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  #1  
Old 04-29-2009, 03:03 AM
bellacox bellacox is offline
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Default Help with Hemagioma in my 8 week old baby

Hi, I am a first time mom and have many questions and concerns about my daughter's hemangioma. It's on her back and at first I wasn't too concerned about it because I was told by her pediatrician that it wasn't supposed to hurt but in the last two weeks it's been impossible to hold her without making her scream so I have to believe that she is in pain. It got to the point where I am afraid to pick her up, change diapers, bathe her etc and I don't know whatelse to do. It's a very painful cry.
Last week, I couldn't take it anymore and I took her to her pediatrician so he could take a look because I've noticed a black scab that kept getting bigger. Once again he told me not to worry about it and just apply Neosporin a few times a day that as long as it wanst leaking any fluid I shouldn't worry about it.
I've been taking pictures of it and I would really appreciate if someone could take a look and let me know if it looks infected. ANY Help would be much appreciated. Please email me at bellacox@comcast.net

Thanks in advance.
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  #2  
Old 04-29-2009, 12:21 PM
jgoodman0814 jgoodman0814 is offline
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you need to take her to see a vascular specialist. your ped is wrong about it not supposed to hurt her. they do hurt, and sounds like your daughters is ulcerated which can be excruciating! If not treated properly can also cause infection. its basically a sore from the skin growing too quickly. tell us where you are and we can help you find someone in your area.
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Old 04-29-2009, 01:47 PM
bellacox bellacox is offline
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I live near Philadelphia.
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Old 04-29-2009, 01:55 PM
jgoodman0814 jgoodman0814 is offline
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http://birthmark.org/physicians_list...p#pennsylvania
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Old 04-29-2009, 08:40 PM
nickbar nickbar is offline
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What you are seeing is likely and ulcer and they are extremely painful. I would highly recommend using zinc oxide or aquapher to keep the area moist. It is also very important to make sure the area is not infected. Do you see yellowish puss? I do agree, having this seen by a vascular specialist is a good idea.

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Old 04-30-2009, 12:00 AM
bellacox bellacox is offline
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I do see some yellow spots on it but haven't noticed any discharge. I am always looking at her clothes after we take them off to see if there's anything but with the Neosporin that her ped said to apply, I never know if it's the ointment or a discharge. I already contacted a specialist in Philadelphia and they are currently trying to fit her in. Now the struggle will be to get a referral.
I will buy aquapher and use that meanwhile. Thanks for your help.
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Old 04-30-2009, 12:52 PM
CarrieChris CarrieChris is offline
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Ditto all of the above. Those ulcers are terribly painful. I hope they can get you in really soon.
Carrie
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Old 04-30-2009, 09:32 PM
nickbar nickbar is offline
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The vascular specialists I have consulted with over the years have not recommended Neosporin. It will dry out too fast. In the mean time, do contact the specialists via ask the experts. Is she running a temp?

Corinne
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Old 05-01-2009, 02:51 AM
DianaK DianaK is offline
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I had no luck with any of the ointments for our daughters ulcerating hemangioma. I found just keeping it clean helped it heal faster. We are now seeing Dr. Reinisch in LA and he stated that a numbing cream could be prescribed so cleaning is less painful.
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Old 05-01-2009, 01:18 PM
jgoodman0814 jgoodman0814 is offline
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that numbing cream is called litacain! its the best.
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