We have been told repeated times that my daughter had a hemangioma on her right index finger at the first knuckle. Each visit we were told, don't worry it will go away give it time. But it continues to grow. So we went in for another opinion. A 3rd opinion and we finally got a real diagnosis. She has a venous malformation and now we are going in to her original Dermatologist to discuss treatment plans. I guess what I am getting at is, if she has one VM is there a chance that she would have more? She was born with this one on her finger and it has been getting bigger ever since and she has no evidence of having more. But I have read that some are internal. So should I be worried that she could have more that we are not seeing? Should I have her doctor do a scan to check for more or is it a single thing incident? I am relieved but worried. Glad to finally know what it is but worried of whats to come. Any information that could help ease my mind would be great and greatly appreciated.
Please email Dr. Fishman from ask the expert area of this site. For peace of mind you might want a full scan. Dr. Fishman would be the best resource for if this is necessary. The rule of thumb is for hemangiomas (having 3 or more external lesions), not vm.
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.
Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.