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  #21  
Old 02-24-2010, 09:10 PM
Tessamarie Tessamarie is offline
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Hi: I think my daughter has the start of a hemangioma on her nose. Her sister has one on her forehead so I have an idea of the general looks of the starting phase of it. I am going to post a picture with this- if anyone can let me know if this looks similar to what they experienced/saw at the beginning of their child's nose hemangioma, I'd appreciate it. My daughter has had the tiny red mark since birth, she is now a month old (the pic is recent) and her nose has continued to look quite swollen at the tip. Any opinions? Do you think it probably is one?
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  #22  
Old 02-25-2010, 03:37 AM
bumfuzzle bumfuzzle is offline
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Default 2nd Laser Treatment

Hi All,

Nice to hear from you all, thanks for the kind notes.

Well after our first laser we were feeling pretty good for the first week or so. Our daughter's bright red area desappeared and the deeper purplish area seemed to be shrinking a bit as well. However after another week went by the deep area seemed to be becoming darker red and growing a bit again.

We contacted Dr. Delfanian a few days earlier than our original follow-up appointment, and after viewing pictures he agreed with us that we should hit the H with the laser again. We knew we would be, but this was about two weeks earlier than we had anticipated.

So two days later, today, we were back in the hospital. The treatment went fine. Her nose appears to have gotten "zapped" a little more than last time and is pretty much totally dark purple. Which frankly we take to be a good thing. Dr. Delfanian feels good about the way things are going and has told us that he is 100% certain that if we hadn't moved so quickly on this that the H would be fairly large by now.

Ouest also had a very small H on her arm. We had been keeping an eye on it and in the past two weeks it had started to raise up so we went ahead and hit that with the laser today as well. Seems to us, and to Dr. Delfanian, that there really is no reason not to take the offensive with Hemangioma.

Anyway, that's it for now. We'll know more in the next week or two as her nose heals from this latest round. Here's a picture from this afternoon. It's a little scary looking, but from the first laser treatment the dark purple area was the part that healed the best, we're hoping for similar results this time.

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  #23  
Old 02-25-2010, 12:21 PM
missy missy is offline
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LOL For some reason, that pic is hilarious!

She's a cutie! Dr Delfanian's a good guy, isn't he?

Missy
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  #24  
Old 02-25-2010, 08:27 PM
nickbar nickbar is offline
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Yes, I would have this evaluated. I can't really see the superfical part of the h., but the shape does remind me of early stages of a deep nasal lesion. Keep up withthe photo record of the changes.
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  #25  
Old 02-26-2010, 06:43 PM
Tessamarie Tessamarie is offline
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Hi: here is the update, our family doctor said that it may or may not be a hemangioma and to wait and see. I need her to do the referral to see a specialist so I am a bit frustrated with the whole process here in Canada.
kriswoodmckay: Just wondering, what ear, nose and throat specialist did you see in Ontario? I would like to get a name of a doc so I can get my doc to do a referral. Thanks!
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  #26  
Old 02-26-2010, 09:49 PM
newmom newmom is offline
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Tessamarie - I don't know where in Ontario you are, but there is a Dr. Elana Pope at Sicks Kids hospital in Toronto. She is a pediatric dermatologist who specializes in hemangiomas. We saw her this week for our daughter's hemangioma (not on nose) - she wasn't helpful for us - we've chosen laser treatment and have started it in the US. Sick Kids just started using lasers last month (gulp!). But if it is medication that you need, you could see her - her resident told me she is a big believer in propanolol. I would go back and insist that your family doctor refer you to her, I got an appt pretty quickly - within 2.5 weeks of the referral being sent, which is pretty good for Canadian standards! Good luck!
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  #27  
Old 02-27-2010, 04:47 PM
Tessamarie Tessamarie is offline
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We were seeing a doc at Sick Kids too- Dr.Lansang- for my older daughter's hemangioma. They decided to wait and see until the age of 2 and then we'll do propranolol.
I am nto sure what approach we would need with the nose hemangioma-I think laser from what I read.
You did get a quick referral. Ours took 2 months for our first daughter!!
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  #28  
Old 03-01-2010, 05:32 AM
abirk abirk is offline
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From what I've been told propranolol is better used in the "growing stage". My daughter is 2 and we consulted with Dr. Buckmiller in Arkansas and she said my daughter is past the stage it would help. The h never went away so we are schedule to have surgery in November. They usually do nasal tip hemangioma surgery when the child is one. The doctor also said with it being on the nose they don't regress very well.
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  #29  
Old 03-02-2010, 05:01 PM
Tessamarie Tessamarie is offline
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I have an appointment this week with my regular doc. I will insist on a referral to a specialist. Her H is getting worse- it is looking more swollen under the skin and I can tell her breathing is affected too when she is trying to breathe through her nose. Thanks for the suggestions too on who to see in the Toronto area. I will ask about Dr.Pope and other specialists at Sick Kids.
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  #30  
Old 03-03-2010, 01:06 AM
nickbar nickbar is offline
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I am not sure why they'd start propranolol so late.
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