my daughter hemangioma propranolol treatment video - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 02-13-2010, 08:02 PM
halyaj85 halyaj85 is offline
Junior Member
 
Join Date: Feb 2010
Posts: 8
Default my daughter hemangioma propranolol treatment video

http://www.youtube.com/watch?v=m1Rf7qYwcoQ I know I post it before , but would like to do this one more time, I just hope it will give people more confidence about this treatment and maybe will also help someone
Reply With Quote
  #2  
Old 02-18-2010, 12:19 AM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default

Awesome, email me her information, with her permission of course, we would like to list her on our physician resource list. We need her contact info, what she specializes in, title etc.

THANKS FOR SHARING YOUR STORY
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #3  
Old 02-21-2010, 09:29 PM
momof3inpa2009 momof3inpa2009 is offline
Senior Member
 
Join Date: Dec 2009
Location: PA USA
Posts: 112
Default

I watched it a few times. And you are right it does give one confidence!
Reply With Quote
  #4  
Old 02-26-2010, 11:30 PM
momof3inpa2009 momof3inpa2009 is offline
Senior Member
 
Join Date: Dec 2009
Location: PA USA
Posts: 112
Default

I want you to know that I forwarded the link to my daughter's doctors (pediatricians) and we saw the one today and he mentioned your video and said he was amazed!
Reply With Quote
  #5  
Old 03-11-2010, 08:49 PM
marycro marycro is offline
Junior Member
 
Join Date: Feb 2010
Posts: 2
Default My daughter hemangioma

Quote:
Originally Posted by halyaj85 View Post
http://www.youtube.com/watch?v=m1Rf7qYwcoQ I know I post it before , but would like to do this one more time, I just hope it will give people more confidence about this treatment and maybe will also help someone
Dear halyaj85, I'm Mary from Croatia and I have a baby girl,2,5 mounts old. Please can You send me your e-mail so I can contact You because my baby also have a hemangioma on her face and inside her neck.
Reply With Quote
  #6  
Old 03-12-2010, 04:14 AM
halyaj85 halyaj85 is offline
Junior Member
 
Join Date: Feb 2010
Posts: 8
Default

what kind of email with info and permission do you need . This is my daughter , so I can give you a permission Please let me know thank you!
Reply With Quote
  #7  
Old 03-12-2010, 04:17 AM
halyaj85 halyaj85 is offline
Junior Member
 
Join Date: Feb 2010
Posts: 8
Default

Quote:
Originally Posted by momof3inpa2009 View Post
I watched it a few times. And you are right it does give one confidence!
Thank you I'm about to make a new video sometimes soon in HD I'll post a video here, or you guys can keep an eye on my youtube page
Reply With Quote
  #8  
Old 03-12-2010, 04:20 AM
halyaj85 halyaj85 is offline
Junior Member
 
Join Date: Feb 2010
Posts: 8
Default

Quote:
Originally Posted by momof3inpa2009 View Post
I want you to know that I forwarded the link to my daughter's doctors (pediatricians) and we saw the one today and he mentioned your video and said he was amazed!
thank you for that . I just wont to get this video out there for people, so if someone will really need it they will find this info. I just wish someone would do this for me back in the days when we really need it .
I just promised my self that if I'll find help for my daughter I would help as many people as I can !
Reply With Quote
  #9  
Old 03-12-2010, 04:21 AM
halyaj85 halyaj85 is offline
Junior Member
 
Join Date: Feb 2010
Posts: 8
Default

Quote:
Originally Posted by marycro View Post
Dear halyaj85, I'm Mary from Croatia and I have a baby girl,2,5 mounts old. Please can You send me your e-mail so I can contact You because my baby also have a hemangioma on her face and inside her neck.
My email is halyaj85@yahoo.com please contact me any time you really wont .
Reply With Quote
  #10  
Old 03-14-2010, 02:29 PM
adnama adnama is offline
Member
 
Join Date: Feb 2010
Posts: 44
Default

Thank you for sharing. It has given my confidence about starting to son's treatments!
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump