My 5 Year Old's Hemangioma

[briankeay]

Hi guys, time for the weekly update.
Yesterday my daughter visited our GP who was amazed at the difference and is even talking of writing it up as a case.

There is a little bit of difference every day, so hopefully it will continue for the next couple of weeks or so.
It seems that if it carries on involuting like this that she will be left with a wee baggy pouch of skin, which would be far more straightforward to remove.

The size and consistency has really changed, its a lot looser and also is a light pink colour instead of red.

Claire, its early days for us still and I really dont want to get my hopes up too much, but so far it really seems to be working.
Its just an oral medicine, so is less disruptive and my daughters only complaint is that it tastes "yucky". Good luck with the Beomycin treatment, 80% sounds like good odds.

Thanks guys for your continuing support.
Feel free to pm.

Cheers,
Brian

[missy]

Brian,

What a great update!! Thank you so much for remembering to come back and let us know what's going on. And YAY on good news, too.

Hope to hear from you next week.

Missy

[briankeay]

Ok, my daughter was back seeing the Consultant today and he was absolutely delighted with the results.
So much so that he wants to write it up and publish it in the British Medical Journal.

He is now going to operate and remove it, saying that its a whole different ball game now that its changed so much.

We are provisionally booked in for the end of June, so hopefully she will have it done before she starts school after the summer.

We are totally delighted but a little nervous obviously.

I'll post with future progress, thanks for your continued support.

Cheers,
Brian

[missy]

YAY, Brian! Wonderful news. Can't wait to see!!

Hope your nerves settle... it will all be OK!

Missy

[EFMama]

What an encouraging story!

Our youngest has a largish H on his forehead and we're taking the wait and see approach for now. It started what seems to be involution a few months ago, but it's always been a bit of a worry of ours that 'what if it doesn't actually go away?' Glad there would still be options for us to examine later if we continue to wait...