Considering surgery for combo h on forehead - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 04-22-2010, 09:56 PM
slcraig1 slcraig1 is offline
Junior Member
 
Join Date: Apr 2010
Posts: 22
Default Considering surgery for combo h on forehead

Hi all. My daughter is 12 months old and has an h on her upper forehead. It is bright red and raised and is a combo deep/superficial. So far we have done the 'wait and see' approach; but I, like most on this site, I am concerned about 'social issues' when she reaches the age where she is self-aware of her h and other kids are pointing at it. I am considering doing plastic surgery at age 2 if the h is still there. I'm curious to know if there are any circumstances under which it can be covered by insurance; and I'm curious to hear about the results of others whose children have had an exision. I've attached a picture of my daughter at 4 months of age.

Thanks for any feedback!
Sally
Reply With Quote
  #2  
Old 04-22-2010, 10:01 PM
slcraig1 slcraig1 is offline
Junior Member
 
Join Date: Apr 2010
Posts: 22
Default

Oops, forgot to attach picture..
Attached Images
File Type: jpg teething allie4.jpg (26.8 KB, 0 views)
Reply With Quote
  #3  
Old 04-23-2010, 12:50 AM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,726
Default

Hi Sally,

She's gorgeous and already has good taste in accessories!! LOL

Other parents will be around soon and will give better feedback. I just wanted to say hi and welcome.

Out of curiosity, where are you and is your doctor of the same mind as you, that surgery might be appropriate at 2?

Missy
Reply With Quote
  #4  
Old 04-26-2010, 02:00 PM
slcraig1 slcraig1 is offline
Junior Member
 
Join Date: Apr 2010
Posts: 22
Default

Thanks Missy.
To be honest, I'm not sure if our dr is of the same mindset. We've only had one appointment with her (Dr Metry in Houston) at age 4 months, when she suggested the wait and see approach. I am about to schedule another visit so we can check in with her and hear what she has to say. However, I also wanted to hear feedback from the other parents in this forum.
Reply With Quote
  #5  
Old 04-26-2010, 10:52 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,726
Default

Second opinions (and third and fourth) are always welcome! Other parents will be along soon and put in theirs. I'll be interested to hear what Dr. Metry has to recommend at the next appointment, so remember to come back and update us!!

Missy
Reply With Quote
  #6  
Old 04-27-2010, 06:02 AM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default

Time is on your side, I think waiting to see how it goes is valid. It isnt growing anymore? I would recommend getting an opinion from Dr. Levitin the VBF surgical expert on how removal would take place and the end result.

As far as the concern about how other children will react. Like most children the unknown concerns them, Kids aren't born mean... it is a learned behavior and many parents here can agree with experiences with rude adult strangers. What I have noticed over the years that kids are actually the best support systems for other children ONCE they are educated. A simple "I have a birthmark that is fading and it doesn't hurt or bother me"...usually satisfies the kids. It all is the attitude your child learns about ANY difference they have then others. That doesn't mean you don't remove it if you can...but it doesn't have to hurt her psych either. Now, when it comes to insurance...throw it all at them. The concern for quality of life... you name it... and yes this is often covered. VBF has insurance expert to help guide you through the process if needed. And I am always available too and have helped other families get insurance coverage
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #7  
Old 05-04-2010, 12:33 AM
mjwrw mjwrw is offline
Member
 
Join Date: Jan 2007
Posts: 34
Default

Hi Sally,
Your daughter is adorable--what a great picture! I can completely empathize with what you are going through. Deciding about surgery and dealing with the rude comments of others is incredibly tough. Our daughter is about to turn four but had a very similar hemangioma to the one your little girl has. Louise's was only superficial however, so I am not sure of any differences in surgery.
Louise had her hemangioma removed at 13 months by Dr. Reinisch in LA. He and his team were amazing and we have absolutely no regrets. In fact, now it is almost hard to remember what she looked like before.
We went with the wait and see approach for a long time never thinking we would actually resort to surgery. At ten months old we finally saw our first specialist, a local plastic surgeon. He recommended surgery and we thought it must just be a fluke opinion. We then sought about half a dozen others from all over the country. I was able to contact doctors by phone and email then email photos of Louise. All but one of the doctors recommended surgery sooner rather than later.
I know all situations are different but my advice would be to seek as many opinions as you can until you feel comfortable with a decision.
I have attached a picture of Louise on her first birthday, five weeks prior to surgery and then one from February of this year. Her scar is minor but visible--with bangs no one ever even asks about it.
Please let me know if I can help in any way. This forum and the wonderful parents on it were a lifesaver for me when we were going through all of this. Hang in there!!
Rory
Attached Images
File Type: jpg Birthday girl1 Tiny.jpg (36.8 KB, 0 views)
File Type: jpg L Close up.jpg (94.8 KB, 0 views)
Reply With Quote
  #8  
Old 05-04-2010, 10:16 PM
stepmom of 2 stepmom of 2 is offline
Member
 
Join Date: Aug 2009
Posts: 36
Default

personally, i would continue to wait and see... my daughter has a similar H in her hairline, i think it's really one of the best places it can be! A little girl i knew had a rather large H on her neck, which was still visable when she went to school.... she just explained to the kids that she had a birthmark and it wasn't an issue. she is 13 now and you can barely tell it was there.

just my humble opinion, i tend to be anti-surgery (just because of the risks of anethesia) unless it's disfiguring or ulcerating... on the forehead high in the hair line isn't as big of a deal as on the nose, eye, etc... at the same time i do understand if you'd rather just get it over with and be done with it.
Reply With Quote
  #9  
Old 05-14-2010, 09:13 PM
slcraig1 slcraig1 is offline
Junior Member
 
Join Date: Apr 2010
Posts: 22
Default

Thank you everyone for the encouraging words and helpful advice! And Rory, thanks for sharing the pics of your beautiful little girl. I'm so glad to hear you are happy with the results.

I indeed feel so fortunate that the hemangioma is near her hairline, and I've decided to not be in a hurry about taking any surgical measures -- especially since it doesn't seem to be growing any more. I feel like I have time before it will cause any psychological issues anyway; and I'm also encouraged and enlightened by nickbar's suggestion that most children are satisfied with a simple explanation and that it doesn't necessaarily cause psychological issues.

I will still be gathering opinions and information so i'm prepared when and if the time comes though.

Thanks again! Everyone on here is so wonderful!
Reply With Quote
  #10  
Old 05-14-2010, 09:13 PM
slcraig1 slcraig1 is offline
Junior Member
 
Join Date: Apr 2010
Posts: 22
Default

Thank you everyone for the encouraging words and helpful advice! And Rory, thanks for sharing the pics of your beautiful little girl. I'm so glad to hear you are happy with the results.

I indeed feel so fortunate that the hemangioma is near her hairline, and I've decided to not be in a hurry about taking any surgical measures -- especially since it doesn't seem to be growing any more. I feel like I have time before it will cause any psychological issues anyway; and I'm also encouraged and enlightened by nickbar's suggestion that most children are satisfied with a simple explanation and that it doesn't necessaarily cause psychological issues.

I will still be gathering opinions and information so i'm prepared when and if the time comes though.

Thanks again! Everyone on here is so wonderful!
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump