Dear Friends,
I am so happy to have found this group!
We have a beautiful daughter that is affected with Klippel Trenauney syndrome,
which has resulted in severe limb deformities and an amputation. She is amazing.
I look forward to enjoying the group, learning and getting to know all of you
better!
Here is a blog that I write about our family , and in particular, about our
little Quynh.
http://www.whatmattersmost-carol.blogspot.com
Blessings,
Carol