Well, I'm glad that my reply helped. I very well remember going thru the same things when my son was young. I promise you that things do get better, and you'll come out a stronger person because of this.
What would the purpose be for the CT Scan? My sons MRI's had nothing to do with his surgery. Were they looking for internal hemangiomas? My son has cysts on his brain prior to birth and he also had other issues so the first scan was done to rule out PHACE Syndrome which they did. The second scan was done exactly one year later to check his head mostly because his head circumferance was off the charts. They were afraid he may have hydrocephaly. He does not,,,just has a big head like his daddy.