My 8 year old son has a microcystic lymphangioma that affects the right side of his neck and cheek, his whole tongue and the roof of his mouth. We are from Nasville, TN. We were lucky that there is an excellent specialist associated with the Vanderbilt Children's Hospital. His Name is Jay Werkhaven. Joshua was initially diagnosed at 18 months and had the lymphangioma in his neck excised(surgically removed). Dr. Werkhaven was not in Nashville at the time. 4 or 5 years later it recurred and we were referred to him. He is wonderful with Joshua and with us. Dr. WErkhaven has had to laser Joshua's tongue once and is very cautious with any needed treatment and explains everything every step of the way. His contact information is:
Vanderbilt Bill Wilkerson Center for Otolaryngology and Communication Sciences
Dept. of Otolarygology
7209 Medical Center East, South Tower
1215 21st Ave. South
Nashville, TN 37232-8605
My name is Charlotte Chavous. Feel free to tell him I passed his name to you.
My e-mail is firstname.lastname@example.org