Before and After...Timolol - Vascular Birthmarks Foundation Forum

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Old 06-08-2010, 01:42 AM
amm240 amm240 is offline
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Default Before and After...Timolol
Here are two pics of my DD before starting Timolol and two pics after being on it for 2w3d. So glad we had the option of trying this!!!
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Old 06-08-2010, 11:24 AM
missy missy is offline
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Hi,

Thanks for sharing those!!

Missy
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Old 06-08-2010, 12:39 PM
mperron mperron is offline
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Awesome results! Glad your happy with your decision.
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Old 06-08-2010, 12:53 PM
amm240 amm240 is offline
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I wanted to share the pics, because it may help some others trying to make decisions about the hemangiomas on thier own children. Timolol is not right for all H's, but certainly for some!
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Old 06-08-2010, 02:22 PM
sarajustice80 sarajustice80 is offline
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Hi wow that looks awesome!

How did your doc determine that this was right for her? Can you give me some basic info? My dd is 8 weeks and has one forming on her scalp..no one has said anything about this to us.
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Old 06-08-2010, 02:41 PM
amm240 amm240 is offline
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well, they said since i brought her in before it really started growing, we were good candidates. i don't think the success rate is very good once the H is too big. i could be wrong though. they just offered it to us (it's in the research phase now) and we were willing. worst that could happen, in my mind, was that the stuff wouldn't work at all, and then we'd go from there.
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Old 06-08-2010, 02:56 PM
sarajustice80 sarajustice80 is offline
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Was this at your pedi derm? Where are you located? How old is your baby? What are the side effects of the drug? Sorry for all the questions
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Old 06-08-2010, 03:07 PM
amm240 amm240 is offline
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Yep, this was after I went to a pediatric dermatologist. My regular pediatrician wanted to do the "wait and see" approach which I would have done, since it's so small, but it's by here eye and I didn't want it grow super fast overnight and cause issues. I am in Pittsburgh, PA. My daughter was 3 months yesterday (13 weeks). There are no side effects that we were told about or that we have experienced. Timolol is normally used for treating glaucoma, so if the solution accidentally gets in her eye, there would be no issue.
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Old 06-08-2010, 03:20 PM
sarajustice80 sarajustice80 is offline
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Oh wow so they are drops? That's even better. I thought it was oral med. I wish I was given that option..my babys scalp h has started to raise-has a hard bump underneath it so I think its too late. Sigh

Best of luck to you!
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Old 06-08-2010, 03:26 PM
amm240 amm240 is offline
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where are you? it's never too late to ask...
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