7 week old son with Hemangioma on face and doctors advising propranolol - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 06-19-2010, 02:36 PM
momof3inpa2009 momof3inpa2009 is offline
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Join Date: Dec 2009
Location: PA USA
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I have absolutely NO regrets so far in using propanolol. My daughter did the 72 hour hospital stay, she does the blood pressure monitoring and sugar testing twice a month (it was weekly in the beginning) and so far we haven't had any trouble. You can read about her journey here:

http://lexihemangiomapropanolol.blog...roduction.html
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Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now- 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. Surgery was a success!!! April 2014
http://lexihemangiomapropanolol.blog...roduction.html
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