newborn baby boy with PWS on almost half face - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 07-11-2010, 02:50 PM
teardrop2 teardrop2 is offline
Junior Member
 
Join Date: Jul 2010
Posts: 21
Default newborn baby boy with PWS on almost half face

hello to all who we suffer together, each in his own way, the heavy load of birthmarks....

4 days ago, i gave birth to our second son, baby boy...we were so happy cause nothing seemed wrong...he seemed all healthy and normally looking boy...we did noticed red cheek, but we thought it is the cause of birth delivery....the nurse said everything was o.k. after sleeping and resting for some hours, i have seen our little baby again, and immediatelly i noticed the port wine stain. ofcourse i didnt know that that's it....i realised this after searching myself a lot on the internet during last days since i came from birth center. the pediatric doctor sent us to further researches, in order to hopefully deny Sturge-Webers syndrome.... so everything is still possible for us....one minute i cry and next minute i search all the possible sources to find help. but i have very low hope, cause if i understood right the PWS, it lasts all life..... i dont know about laser treatments, do they really help or it is only a slight change, but the stain remains....i wonder also when it is possible to start this laser treatments with such a little child...i come from Slovenia,Europe. Does anyone know which is for me the best place for laser treatments.... i wonder also, are PWS not removable with plastic kirurgy....? please share your information and experience with me, if they are similar....thank you so much!!!
Reply With Quote
  #2  
Old 07-11-2010, 10:47 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,711
Default

Get in touch with Dr. Tombris about where to go at

http://birthmark.org/experts.php He will give you advice!!

Congratulations on your new baby!!!

Missy
Reply With Quote
  #3  
Old 07-14-2010, 02:39 AM
kaykay kaykay is offline
Senior Member
 
Join Date: May 2006
Posts: 231
Default

congrats on the baby ! I hope you are able to access everything you need for your baby boy. Good luck
Reply With Quote
  #4  
Old 07-14-2010, 08:57 PM
fromhungary fromhungary is offline
Junior Member
 
Join Date: May 2010
Posts: 3
Default

Hello.

I'm from Hungary, Szeged. My 22 month old doughter has PWS on her back, bottock, and leg. In Hungary, the doctors don't do laser treatment for younger then 5-7 years old children, because they don't want to do general anesthesia for babys if it is not neccesary.

Congratulations on your little boy. Try to forget PWS just for some minutes, and be happy together. I know adults, who live happy life with PWS, so don't worry so much.

Contact me if you want: editmakra@gmail.com

Edit
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump