treatment for the baby in Europe or Worldwide LATER at home country
i somehow recovered from the first shock, of realising my newborn son, having PWS. He has it 1/4 of the face in the area of cheek, upper lip, ending under the eye and going a bit into the eyebrow, and then from the profile going until the ear...we have been tested the first week for SWS and glaucoma. It is clear for now.
I have started to look around asking questions, searching for centers...but i realised that going out of my country (Slovenia) would be difficult, cause treating PWS is a long way..laser repeated many times.......our doctor at Plastic cirurgy said he would start treating at the age of 2. But according to all i read i am sure that early treatment is coorelated to the most success possible....so i dont know now what to do. Does anyone have the idea, would it be possible to go for example somwhere else in Europe or even to USA for SOME treatments (let's say 4-6 treatments - or all the treatments till age 2) and then continue in HOME country? What are your experiences? Thanks in advance!