Lincoln is doing great. His H have stopped growing and have faded in some areas. He is still having GI problems are we are headed to a specialist in a couple of weeks to see if it is an anatomical, spinal cord, or behavioral issue.
We will also visit our dermatologist again as well. She is excited to see Lincoln and his progress. She has been amazing!! She contacts us after our big visits to Iowa City to see how he did. We couldn't have asked for a better, more caring doctor!
I have been building a blog. One of the pages is on Lincoln's condition, how he was diagnosed, and pictures of his progress. It is a work in progress but if you interested in seeing pictures you are welcome to visit.
We also have a caringbridge setup for him.