facial skeletal hypertrophy

CYM · #1 05-21-2011, 03:21 AM

Just found out the all bones in face under PWS demonstrating overgrowth (nose, cheek bone, maxilla) and face assymetric. Anyone else experiencing this? I am in mid-30s. Any treatments suggested that helped to slow down this process?

missy · #2 05-21-2011, 01:20 PM

I would pose that question to Dr. Nelson. You can get in touch with him here:

http://birthmark.org/experts.php

Let us know what you find out!

Missy

kaykay · #3 05-21-2011, 07:21 PM

my MRI showed thickening of the skull. can't remember what else. I'd like to know what that means for my health

Cheryl521 · #4 07-09-2011, 03:52 AM

Hi all, New to the organization, so not sure I am doing this correctly. But, I have noticed lots of changes with my teeth I think- how does one know the bones showing overgrowth? What were your symptoms. I am finding now at 43 things are popping up that I didn't realized were related to my large facial PWS.

missy · #5 07-10-2011, 02:26 AM

Are you seeing a physician regularly who can help you? You can ask Dr. Nelson via the Ask the Expert form here: http://birthmark.org/experts.php

Missy