I could not agree more about the comment that it is hard when you are out and about -about giving the medication. We put our bottle of propanolol in a container with a lid and we have the syringe in there too. I have 3 alarms set on my cell phone to remind me when to give her the med. But yes it is worth it. I honestly have seen no side effects other than crankiness. Seriously. One other one I have noticed since she is now walking is: Dizziness which is common. When she was a baby and was doing bottles I would try to give her a bottle after her med. But now that she is off bottles, etc. she really doesn't eat much after the med. She has had absolutely no side effects other than the two I've listed. good luck!!!!
Ps: I have now mastered giving it to her at 11 at night without her waking up. lol! I used to just leave her beside me in bed until 11-give her the med. and I would leave her with me until she would go back to sleep BUT half the time she wouldn't go into her crib so I'd leave her beside me. It was a rough night's sleep for both of us. Now that she is older, she goes to bed between 8 and 9 and at 11 I sneak into her room and give her the med. while she is sleeping. Also I don't know how many other propanolol users out there get theirs' flavored but it's a huge PLUS!!!! We pay $3 to get it flavored. (insurance co won't pay for flavoring which is so dumb!) I've noticed prop. is so sticky too...it leaves messes!!! lol!
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now Baby girl is 19 months old
She is two years old now and is off of propanol completely but we do timolol gel twice a day.
Would gladly talk to anyone who has questions on propanolol.
Last edited by momof3inpa2009 : 12-11-2010 at 01:48 PM.