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View Poll Results: Has anyone one had laser teatment
Yes 19 50.00%
no 3 7.89%
would never have because it is apart of me 0 0%
am thinking about it 4 10.53%
I have and it did work and it is all gone 0 0%
I am and it is working 9 23.68%
would like to but can not find a machen 2 5.26%
other 1 2.63%
Voters: 38. You may not vote on this poll

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  #21  
Old 12-01-2004, 05:51 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default Re: Laser treatment

Hi,

Do you have insurance? Most insurance co. will cover laser now as it has proven to help and to help avoid the cobbling issues that some patients experience with untreated pws.

Let me know where you are located an maybe I can help recommend a doctor in your area.

Corinne
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  #22  
Old 12-02-2004, 12:05 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533
Default Re: Laser treatment

Hi Debbie,

Thank you for repsonding, and welcome to the foundation.
I am 22 with facial PWS, I have had laser treatments off and on for 14 years, and in Feb I will be having another one. This one will be different I am also going to have debulking of excess muscule tissue and fat in my PWS.
Dr Waner is going to do the sugery in NY.

If you have or are looking for insurance and they ask you if it is cosmetic sugery, tell them no. Because they will not cover cosmetic sugery. If you find a doctor and he or she writes a letter to the insurance company explaining why laser treatment is not cosmetic, then they have no reason to not cover you. If they still will cover you, let me know and I will send you a picture of Geoff Ritchie to send to them. They will change there mind trust me. Before sugery Geoff had very bad cobbling on his PWS. He is the worst I have ever seen. If you want to learn more about him, he has a website. www.geoffspws.com

I would like hear your story about growing up with PWS.

Hope this helps let use know what happens.


Hank
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  #23  
Old 12-07-2004, 10:43 PM
Jin9084
 
Posts: n/a
Default Re: Laser treatment


this is a test to see if a picture attached.
Jinny

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  #24  
Old 12-08-2004, 04:23 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default Re: Laser treatment

Now Jinny. I love that this is life size picture I can just kiss the computer monitor!!!!!!!!!! He is so yummy.

Corinne

give him hugs from auntie C
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  #25  
Old 12-09-2004, 12:07 AM
Jin9084
 
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Default Re: Laser treatment

Corinne, The funny thing is I thought that I resized it. :-[
Jinny
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  #26  
Old 12-09-2004, 04:54 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default Re: Laser treatment

Dear Austin.

I ordered new glasses today just like yours. But, you are much much cuter in yours



Auntie C
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  #27  
Old 01-08-2005, 04:46 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533
Default Re: Laser treatment

Hey Jinny,

Just wanted to let you know, after seeing your son's picture it took me awhile even to see his PWS.
Has he been getting laser treatment? If so it is working.
What kind of SWS does he have?
I only have SWS with my PWS, (for those that do not know that means where my PWS is, it is on the inside on my brain in the same places).
I grow out of my seizures when I was two years old.
I do have a high risk of Glaucoma in my right eye. I have PWS on my eyeball. I get checked yearly. I actually get checked on Thursday.

Have a good day.

Hank
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  #28  
Old 01-10-2005, 03:50 AM
nimmie
 
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Default Re: Laser treatment

hiya all!

has anyone had treatment so far with other pulse dye lasers and the vasculight other than the vbeam?

I've done my calls but the clinics in Singapore are manned by staff that are not too helpful or knowledgeable. So far those that managed to answer me in detail told me that for pws, they use the cynosure, q-switched and the vasculight.

anyone who has had treatment with them before, please do let me know how it worked out.

Thanks,
Lesley
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  #29  
Old 01-20-2005, 05:40 PM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533
Default Re: Laser treatment

Hi Nimmie,

I have not heard of either of these machines. I would suggest doing more research on this. If you could get more insight at the doctors office or get a second opinion from a different doctors office.

I hope you get some answers.

Hank
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  #30  
Old 01-20-2005, 07:45 PM
Jin9084
 
Posts: n/a
Default Re: Laser treatment

Hey Lesley. I have heard of those lasers. Aren't you on Birthmarks.com ? I think I saw a post from you on there. I know that there is people on that group that has been treated with those lasers. If you are a memeber of Birthmarks.com We would love to have you there. www.birthmarks.com
Jinny
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