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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

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  #1  
Old 12-28-2010, 02:09 AM
gilana gilana is offline
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Default ulceration

hi,

one of my twin daughters has two hemangiomas.. one on her back by her shoulder blade that is large and under the skin and the other one her forehead that is supeficial and small (about the length of a quarter, width of a dime). For the last week the one on her forehead has changed.. it appears that a dark pool of blood is forming in the middle of it.. i wanted to call the dr my husband told me it was fine and there was no reason to call the dr. this started about a week ago.. now i was researching online and found this thread and other stuff.. from comparing pictures and in addition to her age (8.5 months) it seems clear it must be an ulceration and now i am freaked out that i didnt listed to my instincts last week and call the dr... can someone give me more info on this? should i have called the dr right away? does it matter if i wait longer to call the dr? is there a change of hemorrhaging? does this mean she will have a permanent scar on her forehead? does this mean she needs treatment now?? i am worried...

thanks in advance for your words of wisdom!
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  #2  
Old 12-28-2010, 02:33 PM
missy missy is offline
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Hi and welcome!

You should call your physician and schedule and appointment to take her in.

Missy
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  #3  
Old 12-28-2010, 05:27 PM
gilana gilana is offline
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i called him. i am bringing her in tomorrow.... i hope she is ok
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  #4  
Old 12-28-2010, 11:16 PM
missy missy is offline
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Come back tomorrow and let us know the outcome! I, too, hope she is OK.

Missy
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  #5  
Old 12-29-2010, 12:33 AM
smurph smurph is offline
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Just wanted to let you know that I'm thinking of you. I hope your doctors visit goes well. Please let us know how everything turns out. I'm sure the doc. will have some things he/she can do to help. Don't worry..it will work out ok. Please keep us posted.
Shannon
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  #6  
Old 12-30-2010, 02:10 PM
gilana gilana is offline
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hi, i went to the dr.. he said it is ulcerated but that it is part of the normal process that it ulcerates and involutes... he prescribed a prescription ointment that is antibacterial but says it is not infected. she doesnt appear to be uncomfortable... any advice?
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  #7  
Old 12-31-2010, 12:29 AM
smurph smurph is offline
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hmm...I have never thought of ulceration as a "normal" part of the hemangioma process, more of a complication. (but that is just my opinion) Three of my daughters have hemangiomas one was very minor and two more involved. My 5 year old daughter's lip hemangioma ulcerated. Her pediatrician kept telling us it was fine and not painful and to just put vaseline on it. It wasn't until we saw a Vascular Anomaly specialist that we even knew what an ulceration was or that she had one. What an eye-opener for us! I was pretty upset that her pedi wasn't that knowledgeable about her condition. By that point it had caused our daughter quite a bit of pain and she needed some treatment (steroids, bacitracin ointment and xlyocane to numb her lip so she could nurse or take a bottle)

On the other hand, my almost 2 year old daughter's wrist/hand hemangioma did not ulcerated at all. It was very large/puffy and looked like it would just burst but it started to involute when she was about 10 months old and didn't need any treatment.
I think the risk of ulceration often has to do with the location of the hemangioma sometimes. I'm not sure how the forehead usually does in terms of ulcerations, healing, scarring, etc. So continue to listen to your instincts and follow up if you don't think it's getting better.

I'm pretty sure there's a resource on this website that has to do with ulcerations, care, etc. Maybe there will be some info on what to watch for. I just got a little nervous when you said the doctor said it's just the normal process of ulceration before it involutes, because not all hemangiomas follow that process. Don't wan't to scare you though! Hopefully it will not be a big deal and it will just heal up nicely on its own!

By the way, I have twins too (mine are almost 2) They both have hemangiomas too. Crazy huh? How is life with twins for you? Mine is pretty wild! They are a lot of fun (and a lot of work!)

Keep us posted! I hope you are doing well.
Shannon
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  #8  
Old 12-31-2010, 06:03 PM
shannonhinz shannonhinz is offline
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The pediatric dermatologist we see always makes a point to tell us to come in right away if my daughters hemangioma starts to ulcerate. It can lead to scarring and results in a less favorable outcome when the hemangioma involutes.
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  #9  
Old 01-01-2011, 07:05 PM
smurph smurph is offline
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Here's that resource I was telling you about:

http://174.120.2.174/pdf/UlcerCareInstructions.pdf
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  #10  
Old 01-02-2011, 10:04 PM
gilana gilana is offline
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hi guys,

thanks for the advice.. my pediatrician is a great pediatrician in general and awesome about most things i just feel like from what you are saying and what i am reading online maybe he is wrong, but who knows, he has so much experience.. so basically i think what is going on with her hemangioma is that she started sleeping on her stomach a few weeks ago and when she does that she sort of sleeps in the fetal position putting pressure on her forehead and as she moves her head back and forth she rubs her forehead on the sheets. we found small blood spots in the sheet int he shape of her hemangioma.. it scabbed over and then the scab fell off revealing red raw hemangioma underneath. the pediatrician said to dress it using non-stick dressing and bactitran (or something like that) ointment. he said to leave it exposed to air while she is awake and apply the dressing while she is sleeping. it definitely has been healing and is looking better. the part that is ulcerated is almost the whole hemangioma except maybe a few millimeters on the outskirts. what is interesting is that the outskirts definitely appear lighter as if they are involuting so maybe there was some truth to what the pediatrician said?
shannon, do you have g/g twins? i do! they are almost 9 months now.. it has been a wild ride so far... there main issue was bad GERD and severe milk protein allergy. they were initially diagnosed with failure to thrive.. thankfully they are thriving! but it is still the biggest challenge to get them to eat and that is what we spend 99% of their awake time doing.. hopefully it will get better soon.. they are the best kids except when being fed so i cant wait for them to start eating normally so they can totally enjoy themselves!

-gilana
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