ulceration - Page 2

smurph · #11 01-03-2011, 12:33 AM

Hi Gilana! Yes I do have girl/girl twins! It's awesome isn't it? And it is a LOT of work!!! I felt like I spent 99% of their awake time feeding them, etc. so I cannot imagine how difficult it must be for you with the GERD and milk protein allergy. One of my daughters had a questionable milk protein allergy but it ended up not being a huge deal. My twins will be 2 at the end of January! Today I thought I was going to throw them out the window!!!

just kidding, but they are so darn cute that it keeps me going! Are yours identical? mine are fraternal...do you ever go on twinstuff.com? It's a great resource for moms with twins!!

I'm sure your pediatrician is wonderful...I didn't mean to imply otherwise. Our pediatrician was also excellent, one of the best in our area. There are a lot of misconceptions/conflicting information out there even with the best of doctors and sometimes its worthwhile getting an opinion from a specialist when things like ulcerations occur (because they deal with them every day and sometimes they can affect the final outcome) That's why this website is good because it will help parents like us to be more informed and then we are more equipped to ask good questions of the doctors. However, YOU are the best judge of how things are going with your child and just trust your instincts. If it seems to healing up and all seems well, then go with it. You could also send photos to a doctor on the panel here and he can tell you what he thinks. At one point we were getting conflicting information from our pedi and our specialist and I emailed the expert on the panel and that gave us lot of guidance on what to do for our daughter. It was good to get that outside opinion. So maybe you could do that if you weren't sure.

Good luck with your twins! If you want to get in touch with me on facebook let me know (and we can swap twin photos!)...That's always fun! Keep us posted about the ulceration!
Shannon

missy · #12 01-03-2011, 10:32 AM

Are they allergic to casein, then? Can they tolerate soy?

Missy

gilana · #13 01-03-2011, 11:00 PM

hi guys,

thanks again.. missy.. they are allergic to soy protein as well...

shannon, thats awesome! i actually don't have facebook ;-( but if you want to get in touch some other way let me know how... how do i send photos to a doctor panel? how does that work? right now it is healing but i would like to know for the future...what is twinstuff? never heard of it! i usually go on my mother of twins forum.. i live in ny where do you live? and my girls are fraternal as well..

smurph · #14 01-04-2011, 12:55 AM

Gilana,
Go back on the home page and click where it says VBF and then you will see on the left hand side a column titled Ask the VBF experts. I think it's Dr. Levitin you should email in my opinion. That's who I emailed and he was great at getting back to me. You just click on his name and it should take you right through the process. If you have questions, I"m sure Missy could help you. Email me at hohen13@comcast.net and I'd love to chat with you about twins and things like that. I live in New Hampshire by the way. Talk to you soon I hope!
Shannon

missy · #15 01-04-2011, 10:44 AM

Gilana,

My children have allergies to gluten, casein, and soy! I was wondering if you were able to use formula at all? (Nothing to do with birthmarks, at all, I know!)

LOL Bookmark this site and come back when you need bread recipes! I have a ton of good ones!

What Shannon said. Email Dr Levitin through http://birthmark.org/experts.php and he will help answer your questions.

Missy

gilana · #16 01-04-2011, 12:33 PM

thanks guys! yes missy, we are using a prescription formula called elecare that has everything broken down to the individual amino acids.. it costs us about $60/day for the two kids.. it is out of control...

ugabecky · #17 01-04-2011, 08:25 PM

Hi, everyone-- I also have g/g twins who are nearly 9 months old. One of them has an ulcerated hemangioma on her right buttock and it seems to be causing her a lot of pain. I feel terrible about it! Right now we're trying to get into a pediatric derm to whom we were referred by our regular derm, but we have to wait about 6 weeks. The hemangioma ulcerated about 2 weeks ago after a stomach bug. She's on some creams, but we eliminated the Bactroban thinking it might be stinging her and causing more pain. Any additional pain mgmt advice??

missy · #18 01-04-2011, 11:25 PM

Ugabecky,

Email Dr. Serena through http://birthmark.org/experts.php

Call the pediatric derm's office and ask if they really think that it's OK to make a child wait for 8 WEEKS with a big old wound on her bum!!

See if you can get in any sooner and if you can't, call the regular derm back and tell them to refer you elsewhere.

Missy

missy · #19 01-04-2011, 11:26 PM

Quote:

Originally Posted by gilana

thanks guys! yes missy, we are using a prescription formula called elecare that has everything broken down to the individual amino acids.. it costs us about $60/day for the two kids.. it is out of control...

That's nuts!!

I used to bellyache about how expensive my kids' foods are. I will be shutting up now.

Thank you for the reality check!

Missy

ugabecky · #20 01-05-2011, 01:08 AM

Missy- thanks! Our derm is on that personally-- the pediatric derm is out of the office right now, but she's the best, and we're managing it as best we can now. Hopeful that we'll get in touch with her ASAP. It sucks beyond belief...but it looks like things might be starting to heal. I will email Dr Serena. Thanks!!