Anyone not successful on Propranolol?
My five month old daughter has been on propranolol for three months now, after being on steriods for about six weeks as well as timolol (sp?). She has a hemangioma on her left eyelid, an internal one in her neck, as well as a small one on her thigh. All the doctors we have seen (her dermatologist, pediatricain, eye doctor, and cardiologist) all said we should see dramatic results within the first few days. Well, the first few days came and went with no results. We have increased her dosage several times now. She is currently at 2.1 ml twice a day and she weighs 20 lbs. When we were at 1.8 ml twice a day, the dermatologist said she had never taken a child past 2 ml. We go back next week for another check up, but I'm starting to wonder if maybe the this isn't the right treatment for us. The hemangiomas are not growing, they just are not shrinking or changing in color either. I realize every child is different, but has anyone not seen any type of results with propranolol? I was told and read such good things that I think I got my hopes up too high.