I'm having to restrain my poor baby :( - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 06-02-2011, 12:25 PM
missy missy is offline
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I STILL think it was soooo creative of you to sew your own and it looks so cute!

Last night, while I was checking posts, my kids (age 12 and 7) were standing behind me and saw the photo of your daughter. Right away, they both said, "awwww." My 7 year old is very concerned about your baby's pain level and quite upset at the thought of surgery, because he thinks it will hurt even more. He had a short cry for her!

I promised him that you would let everyone know how things went!

Missy
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  #12  
Old 06-02-2011, 06:51 PM
twinmommy twinmommy is offline
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aw, I got teary eyed reading that. My friend's daughter is 7 and is so sensitive, I can imagine her being upset too.

We are scheduled for tomorrow but still waiting for the insurance authorization. It is showing as "pending". I might have to get all Angry Momma Bear on them today... they need to understand the urgency at this point. Too much pain and bleeding... this needs to stop.
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  #13  
Old 06-02-2011, 10:03 PM
missy missy is offline
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"pending?" Really?

Red tape is frustrating. I'm having a HUGE rant in my head that is actually too rude to type out, even if I could spell all the words right.

Keep it up, though. Keep fighting 'em. And later tonight, after she's in bed, treat yourself to a nice long bath and a glass of wine. It's only a couple of stressful weeks and when it's all over, well, it'll be over.



Missy

Last edited by missy : 06-02-2011 at 10:04 PM. Reason: As it turns out, I DIDNT spell all the words right. LOL
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  #14  
Old 06-03-2011, 01:45 AM
smurph smurph is offline
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I will be thinking of you tomorrow. I'm sure you are doing what is best for her. My daughter had an ulcerated hemangioma on her lip and it was much smaller and she screamed and screamed in pain for the longest time...so I can only imagine what you are going through. Your heart must be breaking. I'm sure all will go well and she will heal up nicely and you can move on from this painful experience. Please keep us posted! Sending you a hug!
shannon
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  #15  
Old 06-03-2011, 06:32 PM
jacqueea jacqueea is offline
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Poor sweet little girl. I hope that she gets the best care you can find, my daughter will be having two treatments in a week and a half. If you ever want to talk im here for you.
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  #16  
Old 06-04-2011, 01:19 PM
missy missy is offline
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Hey!

It's Saturday! How did it go???

Missy
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  #17  
Old 06-04-2011, 04:55 PM
PaperDoll PaperDoll is offline
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Following along and hoping your little sweetheart is healing nicely!
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  #18  
Old 06-05-2011, 12:54 AM
twinmommy twinmommy is offline
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Got home a little earlier, I had a long night awake in a hospital chair that was not made for sleeping, in a room with 3 other sick kids - anyway,

The surgery went well, 2 hours of hell for me, but she is home now and seems like a calm happy baby again.

This is not the route I wanted to go, I desperately wanted the beta blocker to work for her, but that's not here and now. The here and now is she is not in pain any longer...



Thank you all for your support.
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  #19  
Old 06-05-2011, 01:06 AM
KatieG KatieG is offline
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I am glad she is no longer in pain. I know its a lot to take in after surgery, but in a few days the swelling will go down and she will be awesome!
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  #20  
Old 06-05-2011, 01:12 AM
abatie abatie is offline
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Glad all is going well and surgery is over. It is so hard to have to hand your child over but in the end you know it is what you need to do. It sure doesn't get any easier though! Hope all continues to go well and that healing takes place quickly.
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