naturally involuting H reappearing again - Vascular Birthmarks Foundation Forum
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  #1  
Old 07-18-2011, 11:29 AM
adnama adnama is offline
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Unhappy naturally involuting H reappearing again

Hi everyone, a couple of weeks ago we got some great news about our sons H on his forehead….he is finally going to get surgery for his H within the year!! We are very excited that the Doctors gave him the thumbs up to surgery because his H had involuted enough (naturally) for them to remove the H with minimal scaring.
However, my husband I just recently went away for the weekend and when we returned his H had seemed to swell right back up to a large H (back to the size it was when he was 8 months old, he is 27months old now). It had involuted significantly this past year, it was almost all skin colour, the skin was loose and soft (mushy) to touch. Now it is large again, hard and some of the redness is back. His Grandma said he was sick (fever, sick tummy) over the weekend and that’s when his H began to reappear. Has anyone else experienced this before? What should we do?
Any advice would be appreciated, thanks!
Amanda
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Old 07-18-2011, 12:25 PM
missy missy is offline
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I do know that other changes, especially being ill, can affect the way a hemangioma looks. I mean color changes are normal if the child cries or gets upset or if there is a change in temperature.

Has he had any imaging studies done? ultrasound? mri?

What does it look like this morning (it's Monday here)?

Is there anything you can think of that might have been different this weekend? Did his grandmother give him any medication (like a fever reducer ... advil, tylenol, etc) or could she have fed him a food he'd never eaten before?

Can you post a photo? If you have one and can't post it for some reason (a lot of cameras, even phone cameras, take pics that are too large to post) send it to me at contact@birthmark.org and I'll post it for you.

Ask an expert if you'd like: I'd suggest Dr. Levitin http://birthmark.org/node/152 Call his doctor as soon as you can.

Missy
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Old 07-18-2011, 12:28 PM
missy missy is offline
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PS ... I don't mean to suggest that his grandmother did anything wrong. If a child has a fever and upset tummy, you give some advil and soak up an extra warm snuggle. So many good veggies and fruits are in season now, of course he should try a new food!

Come to think of it ... is she available to the rest of us? I have two boys and pay well

Missy
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  #4  
Old 07-18-2011, 10:12 PM
missy missy is offline
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Here ya go!

The ones ending in "a" are older. The ones labelled July 18 are new.

Missy
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