Lip Hemangiama - Vascular Birthmarks Foundation Forum

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas
Reload this Page Lip Hemangiama

Reply
 
Thread Tools Display Modes
  #1  
Old 07-30-2011, 08:53 PM
sammy79 sammy79 is offline
Junior Member
  
Join Date: Jul 2011
Posts: 2
Default Lip Hemangiama
Hi guys, just discovered this site and wanted to ask about something that has been bothering me for some time.

I've had a hemangioma on my lip my whole life. 4 years ago I had it surgically removed however it has come back but not to the extent that it was before. I'm confused because I thought this was something you would get as a kid and I don't understand why it would come back once it's been surgically removed. I guess I'm looking for some background information and I'm wondering if I'm going to have it surgically removed every 4 years?
Reply With Quote
  #2  
Old 07-30-2011, 09:15 PM
abatie abatie is offline
Senior Member
  
Join Date: Oct 2009
Posts: 230
Default
Are you sure it was diagnosed correctly? From what I have learned about hemangiomas on this board they are a childhood problem and if it was removed it shouldn't have returned. This isn't my area because my child has CMTC and not a hemangioma so I can't be sure I am right. There are many others around that will check in soon that know more about this. This is a very active section of the board.
Reply With Quote
  #3  
Old 07-30-2011, 09:41 PM
sammy79 sammy79 is offline
Junior Member
  
Join Date: Jul 2011
Posts: 2
Default
Yes that's what I though as well. Before I got it removed it was pretty noticeable, it was bluish and purplish in color, i think the doctor described it as a strawberry hemangioma. After I had the surgery it was prety much gone but now it's been coming back for the last two years although it's not as big as it was before but I guess it bothers me mentally. The surgery was not fun as I couldn't really eat anything for 1 week after because of the scar so I really would rather not do that again.
Reply With Quote
  #4  
Old 07-30-2011, 10:38 PM
abatie abatie is offline
Senior Member
  
Join Date: Oct 2009
Posts: 230
Default
I have heard of a lot of times that vascular malformations are misdiagnosed as hemangiomas. Wait and see what others say but my thought is that you were probably misdiagnosed. It may also be tough to find a specialist to give you the correct diagnosis. Have you checked the physician list to see if there is anyone in your area?
Reply With Quote
  #5  
Old 08-08-2011, 12:03 PM
smurph smurph is offline
Senior Member
  
Join Date: Jan 2007
Posts: 310
Default
I agree that it probably wasn't a hemangioma. I bet if you email one of the physicians on here they will be very helpful to you. They are very knowledgeable about the differences. Good luck! I hope you are able to find some answers.

shannon
Reply With Quote
  #6  
Old 08-08-2011, 09:12 PM
nickbar nickbar is offline
Senior Member
  
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,075
Default
Let me know if you need any help
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
Reply

« Previous Thread | Next Thread »

Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump