help - new zealand - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 04-04-2004, 07:16 AM
Lee New Zealand
 
Posts: n/a
Default help - new zealand

I went to see Dr Tan with regards to my symptom. I have KS and port wine, Dr Tan (after my ultrasound) would like to check my veins underneath near the bone to see if it would be safe to operate, as I suffer terribly with thrombosis (in summer) and cramps in winter. Anyway, he suggested that having lazer treatment will not help my cause. Please can anyone help me, I desperately would like to remove this pws, it's all over my right leg. I have had lazer treatments before, which has lightened it, but not taken it away. Please anyone!!!!thank you Lee
Reply With Quote
  #2  
Old 04-04-2004, 04:20 PM
Lise
 
Posts: n/a
Default Re:help - new zealand

Lee,

With KTS, a surgery can be done if the deep venous system is intact. As to your portwine stain, it is a part of KTS; unfortunately a PWS cannot be taken off, only lasered (and it does not always work).

You seem to be in very good hands with Dr. Tan. For more information and support on the Web, I suggest you go to www.ktfoundation.com.

I hope this helps a little. Good luck. And keep us posted with developments.

Lise (Montreal, Canada, I have AVM of the lip)
Reply With Quote
  #3  
Old 04-04-2004, 07:09 PM
Lee New Zealand
 
Posts: n/a
Default Re:help - new zealand

Hi Lise, thanks for the information, Dr Tan was very accommodating in this regard. However I live in Auckland and he is in Wellington, which would mean if I fly will take 1hr and if I drive will take 6 hrs. I have a son of 6 and it would be rather difficult to tag him along. (even though he would love to fly). Dr Tan will be informing me of another surgeon here in Auckland. I am a bit sceptical, and I have to go for an ultrasound to check if my veins are ok. With this being done,and suggested by Dr Tan (apparently my syptoms with age can deteriorate) that I should have this done, what I need to find out is if anyone has had this done, and if there was any change to their pws? I might be wrong but if this operation is done, and the blood flow is corrected will this not help the pws and not be soooo red or purple? looking forward to your response. Thanks Lee
Reply With Quote
  #4  
Old 04-04-2004, 07:36 PM
Lise
 
Posts: n/a
Default Re:help - new zealand

Lee,

I know very very little about KTS, so I can't answer your question. I suggest another link: it is a support group: www.k-t.org. If you surf on their site, you'll come to a place saying "Visitors to this page from other countries".

Also on this VBF site, left menu, click on Medical Papers: the last document listed is about treatment of KTS.

Hello to New Zealand from (French) Canada!

Lise

Reply With Quote
  #5  
Old 04-05-2004, 05:36 AM
Lee New Zealand
 
Posts: n/a
Default Re:help - new zealand

Hi Canada
Thanks for the information, I went into the website and asked to be put on the mailing list. It's awesome that all this information is available. I am going to wait for a response from the website and ask them the questions. Thank you for your help, I am most grateful. What treatment are you going to get, are u going to get help?
Please stay in touch Lise, and thanks heaps.
Lee from Auckland, New Zealand
Reply With Quote
  #6  
Old 04-05-2004, 05:49 PM
Lise
 
Posts: n/a
Default Re:help - new zealand

Hi Lee,

I'll e-mail you some time this week. Here is another link in the meantime www.birthmarks.com

Take good care of yourself.

Lise
Reply With Quote
  #7  
Old 04-05-2004, 07:36 PM
Lee New Zealand
 
Posts: n/a
Default Re:help - new zealand

Hi Lise, awesome web site, joined membership, I found alot of information, and I definately have the KTS, vascular anormalies syndrome. Anyway I found loads of useful information, however the treatments etc. nothing like that in New Zealand, so frustrating!!!! look forward to receiving an email from you. Cheers Lee
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump