Hi there! My daughter has a lip hemangioma and has been seen at Boston Childrens for the past 6 years. We live in NH and I'm not sure how the insurance works exactly, but at times my daughter was on NH Healthy Kids, which is Medicaid and it was accepted in Boston...maybe because there are no vascular anomalies specialists in NH??? I'm not sure if that's the same thing as CT state insurance. I'm sure they are probably great at Yale, too. I thought I'd mention it just in case there was still a chance/or a need to go to Boston.
I know it can be rather alarming to see a hemangioma growing on or near your granddaughter's lip. I was pretty alarmed myself at the beginning of our whole journey. But it seems like you are on a great track just trying to educate yourself and be proactive in getting the opinion of a specialist. This is very good idea since you are dealing with her lip. You'll be able to have it monitored from an early age and you'll be able to know what your options are in terms of treatment.
Good luck with her appointment and keep us posted! Glad you found this site! It has been a lifesaver for me too.