Hello, my name is Dani and my daughter Munchie (as I so lovingly call her) has a heman on her forehead.
When it first started developing, our pediatrician was very "wait and see" about it. She's an amazing ped, but has almost no knowledge of hemangiomas. At Munchie's 4 month well visit, I asked if I could see a dermatologist. She said sure and that if I had a problem finding one, to let her know and she could refer us (we don't need referrals with our insurance). I found a GREAT pediatric derm in town.
The ped derm told us all of our options and my head was just spinning. She started us on Timolol and recommend we go to Propanol next. She gave me the name and number of a pediatric cardiologist to get started on the P.
Now, our daughter has been through SO much in her short little 6 month life. The pregnancy was extremely complicated and her birth was as well (something we didn't expect considering everything with our son was very text book and "perfect"). She came early and spent 8 days in the NICU, to the astonishment of her neonatologists. They expected her to be in MUCH longer considering all the issues she was born with, but she recovered FAST. She's my fighter.
So given everything she's already been through, everything our little family has been through, we decided that the propanol is not for us. The cardiologist would have wanted to run a few tests, of course, but also she would have to have the first dose in the hospital and anytime they upped the dosage that would be the same. It just wasn't for us.
So the next step would be seeing the plastic surgeon.
We did that, and some of the first things he said were "A lot of times we're really treating the parent, not the child." That stung a bit. I can't say that I wouldn't love to see her without that H on her forehead... but my biggest fear is her bashing it open. THAT'S why we're treating at all. Otherwise, we'd just keep covering it with headbands and bows.
I expressed this to him, and he went ahead and scheduled her for "Laser Day". So now we have a game plan... she will have the laser on the 26th.
But because my nerves were SO shot that day, I have no idea what sort of results to expect or how many treatments may be needed. I know I should've asked these things, but I was just... out of it that day.
So now I've become CONSUMED with Google and finding results, but truthfully, there's not a whole lot out there.
So that's how I got to ya'll! I'd LOVE some advice... some pictures (if you don't mind sharing) some stories... anything to help my peace of mind.
I've already called the plastic surgeon's office four times with questions and the receptionist is SO nice every time. She knows I'm just nervous. But the plastic surgeon is the chief of plastic surgery for my town's biggest hospital (and I live in a large city). So clearly he's more than capable. He did tell me that there will be lots of babies there that day. He gets the laser every 6 weeks, so if she needs more than one, which I'm sort of counting on, it will be 6 weeks after that.
So that's our story... any thing you can offer me would be great!!
PS here's my Munchie.