Propranolol for Hemangioma - Vascular Birthmarks Foundation Forum
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  #1  
Old 09-11-2010, 04:37 PM
Kellyl Kellyl is offline
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Default Propranolol for Hemangioma

Hello!
I have posted before but I am writing an update on my son's hemangioma on his nose and neck. We started giving him Propranolol at the end of January 2010 when he was 8 months old. He has been taking it 2 times a day and we have seen a considerable difference! We are very pleased with the results and are going to continue giving him Propranolol per our dermatologist's reccomendation for a couple of more months. Levi has not had any complications due to the meds so we are glad we went ahead and put him on Propranolol. Please contact me with any questions b/c I will be happy to answer them!

* I am going to try and upload before and after pics but I will probably send them to Missy. :0)

Kelly Locke
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  #2  
Old 09-12-2010, 12:13 PM
missy missy is offline
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Default Pics!

Good morning! Here ya go!
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  #3  
Old 09-12-2010, 04:35 PM
jacobs_mom jacobs_mom is offline
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Wow. Your son's hemangioma looks great! I'm so happy Propranolol is working for him! My 5 month old has been on Propranolol for 2 months now. His hemangioma is on his nose, almost in the same place as your son. I haven't seen results that are quite so dramatic as with your son. There are some flesh colored areas but it's still pretty red. But it's only been a couple of months, and after seeing your pics, I'm so hopeful! Thanks for posting!
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Old 09-12-2010, 06:43 PM
momof3inpa2009 momof3inpa2009 is offline
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Hi. He looks great! We have had the same experiences with propanolol. My daughter takes it 3 times a day. She was down to 2 but we think her weight is out doing the propanolol so instead of increasing the amount in each dose we started back with the 3rd dose. How old is your son now?
__________________
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now- 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. Surgery was a success!!! April 2014
http://lexihemangiomapropanolol.blog...roduction.html
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  #5  
Old 09-13-2010, 02:42 AM
Kellyl Kellyl is offline
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The third picture of Levi kind of shows the hemangioma on his neck, which thanks to the Propranolol has decreased dramatically! It was raised and very puffy...

Levi is 16 months old so he has been taking propranolol for almost 8 months now... Hopefully both of his hemangiomas will shrink completely and go away! lol I am just glad people quit staring at his nose! :0)

Last edited by Kellyl : 09-13-2010 at 02:49 AM.
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  #6  
Old 09-13-2010, 02:48 AM
Kellyl Kellyl is offline
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Jacob's mom:
Thanks for the comment!
By the way, do you have a picture by chance of your son's hemangioma?? I have never seen one like my son's on his nose!
Thanks!!!
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  #7  
Old 09-14-2010, 03:27 AM
smurph smurph is offline
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Wow! He looks great! I wish this drug was around when my daughter was getting treated (only 5 years ago). Glad it is going so well for you!

Shannon
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  #8  
Old 09-14-2010, 05:31 PM
carii carii is offline
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Hi everyone, I'm new to this site. My son Julian has 2 hemangiomas, one on his forehead and one on the left side of his butt. They just keep getting bigger (he is 13 weeks old) with no signs of stopping. The one on his forehead has turned a darker red with occasional scabbing and flaking, while the other is still a bright cherry red.

We have an appointment with a specialist at UCSF (Dr. Frieden) on October 4 and I plan to ask her about propranolol. Did any of you have difficulty getting your doctor to prescribe it? Have you noticed any side effects? Were your kids hospitalized for the first few days of treatment?

Levi looks amazing, I cannot even see the one on his neck, and his nose looks great. He is truly a beautiful little boy! I'm trying to figure out how to post some pics of Julian, any tips?
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  #9  
Old 09-17-2010, 10:39 PM
Kellyl Kellyl is offline
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Thank you! I send the pics I want to put of Levi to contact@birthmark.org I think.... (I'm pretty sure that's right!)
Anyway, when I took levi to a Pediatric Plastic Surgeon, they never suggested Propranolol. However, when I took him to a Pediatric Dermatologist, he highly reccommended Propranolol. Good Luck and keep us updated!!
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  #10  
Old 09-23-2010, 01:32 PM
jacobs_mom jacobs_mom is offline
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Kelly: I will send a pic of my son to Missy in the next few days so she can post it!

Carii: We've been seeing Dr. Frieden since my son was 2 months old. He's now 5 months old. First she started him on steroids, but the side effects for my son were AWFUL. A month later, the hemangioma started getting bumpy so we stopped the steroids and she put him on Propranolol. He did not have to be hospitalized at 3 months. She just wanted us to watch out for side effects. (At 2 months however, she would have wanted him to be hospitalized.) Propranolol seems to be working well for him. There have been no side effects. Hope the appointment goes well! Keep us updated!
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