Your daughter is adorable. The good news is that the hemangioma has stopped growing. However, the reason you might not be seeing the shrinking of the h. might be related to how late the propranolol was started. Based on research and reported from families, the successful reduction of the lesions comes from use during the growth phase. It could be that her hemangioma had stopped growing already, so you might not have as much success with propanolol now. I would research what lasers can do for her hemangioma. Being that it is raised, laser might not be an option...but it can be very helpful in healing ulcerations. I would highly recommend contacting Dr. Stuart Nelson on ask the expert list to get his opinion on laser treatment. I would also recommend emailing Dr. Gregory Levitin from ask the expert page as well to get other options and advice. It is likely that surgical excision would be the route to consider. Please feel free to email me if you need any help.
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Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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