Lucille, this sounds like Klippel-Trenaunay Syndrome. There is an expert on this website for KTS -- look at the Medical Experts, and you can send the KTS expert a message. Also, join the Facebook group "Klippel Trenaunay Weber Syndrome," as well as avmsurvivors.org
Some of the members on the KTS FB group can give you tips for the bleeds. Sorry, a skin graft will not help and will cause complications.