Abdominal Ultrasound and Hemangioma - Vascular Birthmarks Foundation Forum
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  #1  
Old 01-02-2013, 06:20 PM
Aviannasmom Aviannasmom is offline
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Default Abdominal Ultrasound and Hemangioma

Hello All,

My daughter has a hemangioma on her head/forehead. My pediatrician suggested that we go get it looked at by a vascular anomalies specialist because she also has 8 very tiny hemangiomas all over her body. None of them are raised and the one on her forehead has actually gotten lighter and a bit smaller.

I just was looking for some advice on what to expect when we meet with the doctor and if there are any questions that you all would suggest that I ask.

From what I have read online is that they are doing the ultrasound to make sure that she doesnt have any hemangiomas on her liver.

Thank you so much for an advice you can give me.
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  #2  
Old 01-16-2013, 02:49 PM
mjwrw mjwrw is offline
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Sorry no one has posted anything to help you out here. Just wanted to check in and see if you have had the appointment yet and how it went.

My daughter had a large forehead hemangioma that was removed by Dr. Reinisch. I am afraid I do not know much about ultrasounds or other treatments as we went the surgery route. Just wanted you to know there is support here if you need it. I found this site incredibly helpful and the people on it amazingly supportive when we were going through all of this with our daughter several years ago.

Hope you have a some good news
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Old 01-16-2013, 04:40 PM
smurph smurph is offline
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Hi there!
I have not had personal experience with this before but I have heard that if a child has multiple hemangiomas that they should be checked for internal ones. Did you have your appointment yet? Hope everything is going ok! Keep us posted!
Shannon
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Old 01-17-2013, 01:07 AM
nickbar nickbar is offline
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Please do give us an update if you have had a chance to have the ultra sound.
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Old 01-27-2013, 03:14 AM
Aviannasmom Aviannasmom is offline
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Thank you for the replies. We had a little situation with our insurance so we have not been able to take her to the specialist yet. We will be taking her in the beginning of February. I will update after we have had the appointment.

Thanks again!
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Old 01-27-2013, 03:30 AM
Aviannasmom Aviannasmom is offline
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I thought I would post a photo of her birthmark too. This was one of her newborn photos but it has not changed much, if anything it has gotten alittle bit smaller.

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Old 01-28-2013, 03:08 AM
smurph smurph is offline
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Oh my goodness! She is so beautiful! What a cute picture. Good luck with your specialist appointment!
Shannon
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Old 02-15-2013, 05:04 AM
rachels rachels is offline
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My daughter did an ultrasound because she has 5 H's of different sizes. They checked her liver and her abdominal area(kidney, etc.). It's pretty much like any ultrasound but she has to remain pretty stable during the exam. She was little at the time (1.5 months) so it was a bit hard. I ended up having her lie down on my chest during the process. But overall the process was not painful or intrusive.
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Old 08-28-2013, 04:31 AM
Shannon77 Shannon77 is offline
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It is a good sign for you.

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Last edited by Shannon77 : 03-19-2014 at 05:28 AM.
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