An update on success of propanolol and timolol. - Vascular Birthmarks Foundation Forum
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  #1  
Old 07-23-2013, 01:30 PM
momof3inpa2009 momof3inpa2009 is offline
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Default An update on success of propanolol and timolol.

I know it's been awhile since I've stopped in but here is an update for those that may remember me OR for those that need help:

http://lexihemangiomapropanolol.blog...y-23-2013.html

I know what it's like to just be starting out with all of this & wanting and needing help or even just words of encouragement. So that's why I figured I'd update.
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Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now Baby girl is 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. At this point we have surgery scheduled for April
http://lexihemangiomapropanolol.blog...roduction.html
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Old 07-23-2013, 08:56 PM
smurph smurph is offline
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Thank you so much for sharing!!!
Shannon
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  #3  
Old 07-24-2013, 01:23 AM
missy missy is offline
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I'm so glad to see you! I was just about to write you and let you know I couldn't find you. But here you are.

So glad! Thanks for the update.

Missy
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Old 08-19-2013, 04:50 PM
Arpschi Arpschi is offline
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Hi all,

my dauther is 2 years old and we started the propranolol-treatment since she was 2 month for a range of 1 year and 3 month (we administered it orally
every 8 hours). After that we continuing with propranolol ointment directly on the affected areas (cheeks left and right, lips, chinn) . The regression of the hemangioma wasn't still properly satisfactory.
Could you please tell me some more about the timolol gel you do twice a day.
Thanx in advance
Kind regards from germany
Sascha
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Old 09-25-2013, 12:01 AM
momof3inpa2009 momof3inpa2009 is offline
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Sascha

Timolol is a topical gel that is rubbed into the hemangioma. Many do not believe that it works well on "deep" hemangiomas and to be honest we didn't think it was working either until we stopped using it. We saw a huge difference when we stopped. If you have any other questions feel free to message me.

Thanks Missy!!!!
__________________
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now Baby girl is 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. At this point we have surgery scheduled for April
http://lexihemangiomapropanolol.blog...roduction.html
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