2year old daughter pws - Vascular Birthmarks Foundation Forum
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Old 05-30-2014, 04:05 PM
selfportait selfportait is offline
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Default 2year old daughter pws

Hi I'm new on here . My daughter was diagnosed with pws at stain at birth which coverS her whole left leg from the bottom of her back to her toes.
she began receiving laser over a year ago and has laser treatment every 12 weeks .
The first 3 treatments did not work as the laser was not strong enough and we were told that the vessels in her leg were refilling after a few weeks and the darkness came back because of this.
The 4th which was on the highest level of laser we are still waiting to see if it has worked.
My question is i have read through a lot of posts on here on the complications of pws etc as you get older. My daughters left leg is approx 3 cm wider than her right leg while this does not seem to concern her medical team , i am just wondering if anybody else had the different width with the pws
thank you
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Old 05-30-2014, 04:09 PM
selfportait selfportait is offline
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oops forgot to add two of her toes are also webbed but this does not seem to restrict her in anyway
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Old 05-30-2014, 11:57 PM
missy missy is offline
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Hi and welcome!

Many patients with pws on their extremities report that they are larger than the non-affected arm or leg. Have you asked Dr. Rosen (our expert) what you should look for and expect?

http://birthmark.org/experts.php

Missy
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Old 05-31-2014, 10:50 PM
selfportait selfportait is offline
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hi missy thank you for reply i will do that
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