I read a post here recently about Dr. Wood at Gillette Childrens, and Dr. Lee and the U of M.
I was curious to know if you have any more to say about either of these doctors.
We have been seeing Dr. Wood for 2 years, but are considering a second opinion and have made an appointment with Dr. Lee. Our son has an extensive facial PWS. We are concerned that it is more involved...i.e. gums, inner ear, etc. He also already has hypertrophy. He has never had an MRI, and we want one. However Dr. Wood dismisses all of our questions continuously. It's very frustrating.
I agree that Gillette is wonderful to go to. I also agree that Dr. Wood is a very good Plastic Surgeon. He just doesn't seem to want to address any of the medical issues that may occur with a PWS.
I also have an appointment at the Mayo Clinic...however they are out of network for my insurance provider. It would be a costly decision.
Feel free to email me, I welcome anyones ideas at this point. I seem to have hit a brick wall.