Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




LIVE CHAT WITH VBF EXPERTS – TERMS AND CONDITIONS


  1. Acceptance of Terms

    Welcome to LIVE CHAT WITH VBF EXPERTS, a service owned and operated by the Vascular Birthmarks Foundation.

    By using this service, you are agreeing to comply with all rules, policies and terms. If you do not agree with all the Terms, do not use this service.

  2. Definitions

    Experts used with the LIVE CHAT WITH VBF service are medical professionals and other professionals that have been deemed by VBF to be an expert in their field.

  3. Right to Modify

    LIVE CHAT WITH VBF EXPERTS may change, revise or modify any of the Terms at any time by posting them on the Site. Changes shall automatically be effective upon posting. Your continued use of this service will signify your acceptance of the changes. If you do not accept the changes, your sole and exclusive remedy is to discontinue using this service.

  4. LIVE CHAT WITH VBF EXPERTS is a Venue; Third-Party Content

    The Live Chat With VBF service is a venue for informational and educational purposes to allow affected families, individuals, or other professionals concerned with families affected by vascular birthmarks to ask questions and for Experts to answer them. Users of this service, not VBF, provide the content in questions, and VBF experts provide the answers. VBF will collect questions and combine similar questions to minimize repeating the same questions and to allow more people to get answers. A compilation of the questions will be sent to the Expert prior to the LIVE CHAT WITH VBF EXPERTS session. VBF will moderate the sessions to insure questions are answered in a timely manner. Accordingly, VBF is not liable for any acts or omissions of Experts, content in Posts, or the ability of Experts to answer questions. Notwithstanding the foregoing, LIVE CHAT WITH VBF EXPERTS reserves the right, but is not obligated, to refuse to post or to remove any content.

    EMERGENCY QUESTIONS AND CRISIS SITUATIONS should be directed immediately by telephone or in-person to qualified professionals (e.g. in the U.S., call 911). This service is not the appropriate venue to deal with such situations.

  5. LIVE CHAT WITH VBF EXPERTS Answers

    Answers presented through LIVE CHAT WITH VBF EXPERTS is offered in summary form in order to impart general information relating to the diagnosis and treatment of vascular birthmarks. Such information is not complete and should not be used as a substitute for a consultation or visit with your physician or other health care provider. Information accessed through VBF website or through LIVE CHAT WITH VBF is not exhaustive and does not cover every aspect of vascular birthmarks. VBF makes no warranty as to the information's completeness, reliability or accuracy. Should you have any health care related questions regarding this matter, please see your physician or other health care provider promptly.

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    Each session of LIVE CHAT WITH VBF EXPERTS will be recorded and posted on the VBF website. Individuals who were unable to access the LIVE CHAT SESSION will be able to “listen” to the 60 minute session for a donation to VBF.

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    The names of individuals asking questions will not be disclosed in entirety. First names and the first initial of the last name may be used or first names and a reference to location (i.e. Mary S., or Mary from Albany, NY). Listen for your name and a reference to your last name or location so that you will know that the question being answered is your question. Individuals who have questions being answered will have a brief amount of time to respond, however, time should be focused on allowing the experts to answer as many questions as possible. Please be considerate of the other people asking questions. If you have further questions you can contact a VBF liaison or the Expert has the option of giving further contact information during the LIVE CHAT WITH VBF EXPERTS session.

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