Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




Meet VBF's 2010 Gala Chairs



VBF is proud to have Marc and Hyleri Katzenberg as our 2010 Gala Chairs.

 

Hyleri Katzenberg

Hyleri Katzenberg was born and raised in Cleveland, Ohio. Her parents, both high powered attorneys, taught her at a young age “that if you’re not part of the solution, you’re part of the problem”. After graduating from UCLA with degrees in Political Science and theater arts, Hyleri went on to study acting at The American Academy of Dramatic Arts in New York City and appeared in many roles on stage, screen and television. Ms Katzenberg founded The Belle Foundation, which gave aid to children with congenital deformities, in 1993 after her overwhelmingly arduous experiences in getting her daughter Carleigh’s hemangioma, treated. Through her role as founder and President of The Belle Foundation, Hyleri raised awareness, funds and lobbied insurance providers to fund treatments for vascular deformities. Through talk show appearances, press coverage and meetings in The White House, Ms. Katzenberg was successful in her crusade. It was through her work as the President of The Belle Foundation that Hyleri first met Linda Rozell-Shannon and her daughter Christine, who sought out Katzenberg to get answers, direction and treatment. In 2008, after Rozell-Shannon had gone on to get her PHD in this field and had founded The Vascular Birthmark Foundation, the two women’s paths crossed once again and Rozell-Shannon asked Katzenberg to jump back on the bandwagon and take on this battle once again, since it had slipped so far backwards since Hyleri had last left things. Although Katzenberg was just months out of surgery and treatment for kidney cancer, she enthusiastically accepted Rozell-Shannon’s request and came aboard VBF as the Director of PR and Special Affairs.

 

Hyleri currently resides in Westport, CT with her husband Marc and their collective 7 children. Together, Hyleri, Marc and their partners, are launching a line of food and beverage products which will be available soon for retail. The Katzenbergs have appeared together on a television show for NBC and have another show in development, as well as a book they are co-authoring.

 

 

Marc Katzenberg

Marc Katzenberg, a graduate of Ohio Weslyan University, left his hometown of Philadelphia, Pennsylvania in his twenties and headed to Palm Beach, Florida. Armed with a lot of enthusiasm and only a few hundred dollars in his pocket, Katzenberg started a restaurant chain called TooJays with his partner Jay (Marc’s middle name is Jay). In 2000, Marc sold his share to his partner and headed up to Fairfield County, Connecticut where he wove his magic formula once again with his chain of gourmet express delis, Katzenberg Kafes. Katzenberg felt the recession coming and in 2007, he sold his chain of restaurants once again and headed to Bejing, China to open restaurants for the Olympics.

 

Marc Katzenberg currently resides in Westport, CT with his wife Hyleri and their brood of seven combined children. Together with Hyleri and their partners, he is bringing to market a variety of unique food and beverage items. The Katzenbergs are also in development on a network television show and a book.