Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary GalaFriday, October 10, 2014 in New York City

VBF 2014 Annual ConferenceSaturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products
 

Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

 

Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.

 

Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.

 

Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.

 

Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.

 

Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.

 

Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.

 

Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!

 

Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.

 

Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.

 

Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.

 

Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.

 

Basia Joyce, VBF Insurance Appeals Specialist
Please send your questions regarding your appeal or request for out-of-network treatment to Basia.

 

Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.

 

Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.

 

Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.

 

Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.

 

Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.

 

Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.

 

Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.

 

Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.

 

Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.

 

Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.

 

Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.

 

Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.

 

Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.

 

Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.

 

Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

 

Eileen O'Connor, Adult Living with PWS

 

Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from www.colortration.com will answer makeup related concerns.

 

Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.

 

Dr. Thomas Serena, Wound Care Expert

 

Sarina Patel, Young Adult Advocate

 




 

What Our Families Are Saying About Us

 

"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown

 


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.
Gina

 




VBF 2010 Conference/Gala


The Vascular Birthmark Foundation
Announces the 2010 “Mark of Beauty” Gala
And the 2010 Vascular Birthmarks Conference with Dr. Roy Geronemus and
The Laser & Skin Surgery Center of New York

 


2010 Conference Sponsor

 

It’s that time again – registration is now open for the VBF Annual Vascular Birthmarks Conference. We are very excited to announce this year’s conference will be held in New York City on Saturday, October 9, 2010. This year the conference is one full day. In addition, we are having our 2nd “Mark of Beauty” Gala once again at the beautiful Hudson Theatre located at 145 West 44th Street from 7pm until 10pm Friday, October 8, 2010.

 

The Conference:

 

This year's conference will be held at New York University (NYU) Schwartz E and F auditoriums located at 401 East 30th Street, New York, NY 10016. We only have 50 FREE HOTEL ROOMS for ONE NIGHT (Friday evening) for the first 50 families who register. Once the rooms are gone, we will continue to accept registrations for the conference but you will need to secure your own lodging. You may be able to find discounted rooms at Hotels.com or Expedia.com or other such discounted sites. NOTE: The 50 FREE ROOMS are for families who do not live in the immediate NYC region.

 

This year we will require a credit card for everyone who registers, even if you get a free room and we waive all fees. If you do not show and you have a free room, your credit card will be charged $269 plus tax (cost to VBF). So, please make sure you are attending when you register. We will give a 100% refund if you cancel 30 days prior to the conference (by September 8, 2010) or a 50% refund if you cancel by September 22nd. There will be no refund after September 23, 2010. Lodging will be at the Affinia Dumont or the Affinia Shelburne (both close to the conference and clinic locations).

 

There is a $100 conference/clinic fee per family. This fee entitles the family to admission to the conference, a free clinic appointment and breakfast and lunch, daycare (if needed) and attendance to special sessions (make-up, psychotherapy, support, or legal-insurance services). If there is a financial hardship, fees will be waived but you must contact VBF Ex. Asst. Basia Joyce to apply for a scholarship. Her email is BasiaJim99@nycap.rr.com. If you are only attending the conference or only attending a clinic session, the fee is still only $100. We urge all families to attend the conference and to sign up for a very valuable clinic session.

 

The conference check-in is at 7:30am and conference sessions begin at 8:30am. There will be two distinct paths this year. Path A = Hemangioma presentations and Path B = Malformation presentations (including Port Wine Stains, AVMs, SWS, and KTS Syndromes, Venous, Lymphatic, and Arteriovenous Malformations). Lunch is provided for all attendees from 12:30-1:00pm.

 

Clinic sessions will be from 1:00 to 6:00 pm at the Laser & Skin Surgery Center of New York, 317 East 34 Street – a short walk from the NYU conference. There will be four teams this year: Team 1: Hemangioma (Leaders: Dr. Hochman and Dr. Levitin); Team 2: PWS (Leaders: Dr. Nelson, Dr. Geronemus, Dr. Mihm); Team 3: Malformations & Syndromes of the Head and Neck (Leaders: Dr. Comi and Dr. Fay); Team 4: Malformations & Syndromes of the Extremities (Dr. Rosen and Dr. Delfanian). Other experts will be on each team and will be available for meeting with families throughout the day.

 

Special sessions will be held during the day for make up, psychotherapy, insurance-legal issues, and support.
See links to registration form on-line or you can download and print and mail in the form. We need at least one clear photo for each patient so that we can insure that the patient is put on the correct team for evaluation.

 

A tentative speaker’s itinerary can be found at the link indicated for SPEAKERS ITINERARY

 

The Gala:

 

VBF is very excited to announce that the Chairs for our 2010 “Mark of Beauty” gala are Marc and Hyleri Katzenberg.

 

Hyleri is the founder of the former Belle Foundation, a charity established to help families with hemangiomas. Hyleri and VBF President and Founder Dr. Linda Rozell-Shannon worked together during the first few years of the establishment of VBF. Hyleri was very instrumental in guiding the formation of VBF and in assisting Dr. Linda with her path toward seeking the appropriate treatment for her daughter. Dr. Linda and Hyleri crossed paths again in 2009 and are now working together to assist families affected by a vascular birthmark Hyleri is an established PR and Marketing expert and is currently VBF’s PR and Marketing Executive.

 

The cost to attend this year’s “Mark of Beauty” gala is $150 per person. Attire is dinner/cocktail. We had a sell-out crowd in 2008 and expect to sell out again this year, so register early. We are not ready to announce our celebrity performers, however, stay tuned for an announcement in the next few months. Corporate sponsorships and rates for tables which include raffle tickets, please go to the link for the “Mark of Beauty” Gala.

 

Dr. Gregory Levitin will be honored at this year’s Gala as the VBF 2010 Physician of the Year. If you would like to congratulate Dr. Levitin, please click here.

 

To reserve your spot for either the conference or registration, see the links below.

 

Note: To register by phone with a credit card, contact Basia Joyce, VBF Ex. Asst. at 518-495-3938. For any questions concerning the conference or gala, please call Basia or email her at BasiaJim99@nycap.rr.com


 

Register online now

  1. VBF "Mark of Beauty" Gala Registration
    https://birthmark.ejoinme.org/MyPages/VBFGalaRegistrationPage/tabid/7860...
  2. VBF Conference/Clinic Registration
    https://birthmark.ejoinme.org/MyPages/ConferenceRegistrationPage/tabid/9...
  3. VBF Conference Corporate Sponsorship
    https://birthmark.ejoinme.org/MyPages/ConferenceSponsorshipPage/tabid/78...

Mail in Forms

  1. VBF "Mark of Beauty" Gala Registration
    http://birthmark.org/pdf/2010GalaRegForm.pdf
  2. VBF Conference/Clinic Registration
    http://birthmark.org/pdf/2010ConfRegForm.pdf
  3. VBF Conference Corporate Sponsorship
    http://birthmark.org/pdf/2010GalaSponsorshipLevels.pdf